Every morning I wake up feeling like death. My hands and feet are painfully tight and I feel so weak and beaten up like I have been in the boxing wring all night long. (I have mixed connective tissue disease and erythromalalgia). Last time I saw prof D he told me I had a normal life expectancy......... oh yippee. Right now it would be a relief to be given a more definitive and deadly prognosis.
The heatwave has meant I have to find a dark hole to crawl into. I've had enough already and the prospect of potentially another 20 or so years of this is not good, not good at all.