Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,822 members • 5,405 posts

All posts for January 2012

Russian Weather Front

I was horrified this morning when the weather report stated that Russia was suffering from -16 weather , that was until I realised that it was heading our way...

I was horrified this morning when the weather report stated that Russia was suff...

TJme

•12 years ago

27 Replies

Group Facebook

If you want to join type : Syndrome Raynaud Please help by join these group and post you comments. Family and friends must be informed as well. Thank...

If you want to join type : Syndrome Raynaud Please help by join these grou...

VivianM

•12 years ago

4 Replies

Take a "chill pill".

Yes, my soul, find rest in God; my hope comes from him. Truly he is my rock and my salvation; he is my fortress, I will not be shaken. Psalm 62:5-6...

Yes, my soul, find rest in God; my hope comes from him. Truly he is my rock an...

BIGI

•12 years ago

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If you think He doesn't have a good plan for your life, you might want to think again!

So, here's a little story that I love to tell...and it's true...every word. I know, 'cause I was there. One day, back in late '08 ...that's 2008, not 1908 (I...

So, here's a little story that I love to tell...and it's true...every word. I k...

BIGI

•12 years ago

2 Replies

Here's tha deal...

PROTEIN S DEFICIENCY, A CLOTTING DISORDER-DIAGNOSED SPRING 2007 HYPOTHYROIDISM-DIAGNOSED AROUND 2009 TINNITUS-DIAGNOSED AROUND 2009 HIGH...

PROTEIN S DEFICIENCY, A CLOTTING DISORDER-DIAGNOSED SPRING 2007 HYPOTHYROIDISM-...

BIGI

•12 years ago

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Drums keep pounding a rhythm to the brain...

Drums keep pounding a rhythm to the brain...wow! That would make a good song...I can almost hear the melody!!! Just kiddin'. But, Sonny and Cher had it...

Drums keep pounding a rhythm to the brain...wow! That would make a good song......

BIGI

•12 years ago

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Bence Jones Paraprotein ?

I have had a small amount of this discovered in Blood Test - they then asked for a urine sample -- ( awaiting results) I am panicking .... but I did read that...

I have had a small amount of this discovered in Blood Test - they then asked for...

AliW

•12 years ago

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Does anyone suffer with chilblains ? My hands are driving me mad with this ....

Does anyone have any solution or suffer to ease the itching & soreness - it's driving me bonkers !

Does anyone have any solution or suffer to ease the itching & soreness - it's dr...

AliW

•12 years ago

7 Replies

Be strong and take heart

I am the reluctant host to a few diseases and many other health challenges. We sang this song in church today and it really spoke to me. I hope it speaks to...

I am the reluctant host to a few diseases and many other health challenges. We s...

BIGI

•12 years ago

4 Replies

Him my daughter is 7 years old and she is been diagnosed with raynaud`s. Where can I get infrared gloves for kids?

Jordi

•12 years ago

1 Reply

Does anyone have itching and burning attacks?

I have episodes of itching and burning. My skin is really not that dry. I always try to keep my skin very moisturize.The attacks can last for couple hours or a...

I have episodes of itching and burning. My skin is really not that dry. I always...

msdeedee

•12 years ago

16 Replies

Hi all - update

Index finger still bad and very painful - was admitted as an emergency from clinic appointment last Tuesday = had IV antibiotics and Ilprost to take down the...

Index finger still bad and very painful - was admitted as an emergency from clin...

Anteater

•12 years ago

6 Replies

why??

i dont get it, this is a scleroderma and raynauds website. WHY? are these 2 things linked ?? I have scleroderma, does this mean i have raynauds too :$ im...

i dont get it, this is a scleroderma and raynauds website. WHY? are these 2 thin...

Cherelle16

•12 years ago

20 Replies

Started getting Raynauds I think - Help!

Hey, I was diagnosed hypothyroid a year and a half a go and about 6months ago I started getting what i think is raynauds, but just in one finger! my index....

Hey, I was diagnosed hypothyroid a year and a half a go and about 6months ago...

Nikkimcdougall

•12 years ago

5 Replies

Calcium deposits

I have scleroderma, dermatomyositis, raynauds and mixed connective tissue disease. I have calcium deposits on the front of my hips, my elbows, my fingers and...

I have scleroderma, dermatomyositis, raynauds and mixed connective tissue diseas...

socold

•12 years ago

5 Replies

Does Raynauds always progress to Scleroderma?

What are the first symptoms of Scleroderma? Thanks, Faith

faith89

•12 years ago

7 Replies

Small quantities of Alcohol and Caffeine effect my raynauds. Anyone else?

Ive had raynauds for 16 years now and its only been the past year that I cant even have a pint of beer or a can of diet coke at night as my fingers just swell...

Ive had raynauds for 16 years now and its only been the past year that I cant ev...

hall1982

•12 years ago

8 Replies

Facebook Group about Raynaud.

https://www.facebook.com/pages/%CE%A3%CF%8D%CE%BD%CE%B4%CF%81%CE%BF%CE%BC%CE%BF-Raynaud/21647879176 S??d??µ? Raynaud (with greek language on the keyboard)...

https://www.facebook.com/pages/%CE%A3%CF%8D%CE%BD%CE%B4%CF%81%CE%BF%CE%BC%CE%BF-...

VivianM

•12 years ago

3 Replies

38yrs old and its getting worse

Well my first memory of "white finger" was when i was about 10yrs old and I remember I used to used say " I had dead man's finger" As the years have gone by...

Well my first memory of "white finger" was when i was about 10yrs old and I reme...

elaineder

•12 years ago

7 Replies

I am starting Diltiazem(Dilzem) for the Raynaud's. Does anyone else take this medication? Does it work well and are there any side effects?

Hidden

•12 years ago

4 Replies

Is it selfish?

Im only 16 and have had Raynuads for about 4 years now. It's really bad and i do get upset and down about it, is it selfish of me to do that when there are...

Im only 16 and have had Raynuads for about 4 years now. It's really bad and i...

DeGreenifyMe

•12 years ago

7 Replies

GD-67

I have the Raynauds & Scleroderma curse. I also had problems and had to have my ghaulbladder removed. I had the old fashioned removal because it was...

I have the Raynauds & Scleroderma curse. I also had problems and had to have my...

Shayna

•12 years ago

1 Reply

Someone to talk to?

Hey everyone, Im new on here and suffer very badly with raynauds. I find it really hard sometimes to talk about it because none of my family or friends...

Hey everyone, Im new on here and suffer very badly with raynauds. I find i...

DeGreenifyMe

•12 years ago

18 Replies

Raynaud's Awareness Month - we need your help!

February is Raynaud's Awareness Month and we've been busy preparing for it at Head Office. Anne will be doing radio interviews throughout the month and we will...

February is Raynaud's Awareness Month and we've been busy preparing for it at He...

RSA_Hannah

•12 years ago

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Scleroderma and Gall Bladder Disease

Okay....been fighitng intestinal motility problem! Put on reglan only to end up with tremors. Now back in the hospital with Gall Bladder disease but docs...

Okay....been fighitng intestinal motility problem! Put on reglan only to end up ...

anitamoore4jesus

•12 years ago

3 Replies

does any one's tongue go white, when it gets cold, it is a most peculiar sensation.

patsyb

•12 years ago

2 Replies

How long do you stay off work with Scleroderma/Polymyositis?

I was diagnosed with Scleroderma/Polymyositis overlap last May. I believe it first started in 2008 but I just thought it was fatigue from working too much but...

I was diagnosed with Scleroderma/Polymyositis overlap last May. I believe it fi...

Irene55

•12 years ago

16 Replies

I have Raynauds and scleroderma and seem to be having lots of trouble with my teeth I live in Leeds and wonder does anyone go to the dental

hospital there and do you think they are more help than an ordinary dentist?

Gillg

•12 years ago

5 Replies

Need advice my hands lots of open sores and a few ulcers, painful, dry, redness. Tried many lotions & prescription lotions and compounds.

I also have two open calcium deposits on my right elbow which I have debrided x2 three years ago and was put in splinter for three months to heal. I have...

I also have two open calcium deposits on my right elbow which I have debrided x2...

dawn1972

•12 years ago

10 Replies

Is anybody on high dose 100mg Golimumab?

Hi there, I have Connective Tissue Disease with Scleroderma. I was on the high dose Golimumab 100mg for a few months before I started getting Thunder Clap...

Hi there, I have Connective Tissue Disease with Scleroderma. I was on the hig...

AMDP

•12 years ago

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for January 2012

Russian Weather Front

Group Facebook

Take a "chill pill".

If you think He doesn't have a good plan for your life, you might want to think again!

Here's tha deal...

Drums keep pounding a rhythm to the brain...

Bence Jones Paraprotein ?

Does anyone suffer with chilblains ? My hands are driving me mad with this ....

Be strong and take heart

Him my daughter is 7 years old and she is been diagnosed with raynaud`s. Where can I get infrared gloves for kids?

Does anyone have itching and burning attacks?

Hi all - update

why??

Started getting Raynauds I think - Help!

Calcium deposits

Does Raynauds always progress to Scleroderma?

Small quantities of Alcohol and Caffeine effect my raynauds. Anyone else?

Facebook Group about Raynaud.

38yrs old and its getting worse

I am starting Diltiazem(Dilzem) for the Raynaud's. Does anyone else take this medication? Does it work well and are there any side effects?

Is it selfish?

GD-67

Someone to talk to?

Raynaud's Awareness Month - we need your help!

Scleroderma and Gall Bladder Disease

does any one's tongue go white, when it gets cold, it is a most peculiar sensation.

How long do you stay off work with Scleroderma/Polymyositis?

I have Raynauds and scleroderma and seem to be having lots of trouble with my teeth I live in Leeds and wonder does anyone go to the dental

Need advice my hands lots of open sores and a few ulcers, painful, dry, redness. Tried many lotions & prescription lotions and compounds.

Is anybody on high dose 100mg Golimumab?

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