Posts - PSP Association | HealthUnlocked

PSP Association

9,626 members•11,552 posts

All posts for January 2020

EYE SPECIALIST FOR DIAGNOSIS?

My last two eye exams showed limited downgaze and from there my eyesight hasn't improved making it hard to read for any length of time. My head, neck and...

My last two eye exams showed limited downgaze and from there my eyesight hasn't ...

rideabike

•5 years ago

36 Replies

One month since my dear husband left PSP behind

Tomorrow marks one month since Sandy passed away. We had a beautiful church service last Saturday followed by a Celebration of Life at the local yacht club....

Tomorrow marks one month since Sandy passed away. We had a beautiful church serv...

journeyofjoy

•5 years ago

17 Replies

Off-line communications.

How to communicate off-line. Can this be done? If so, how? Thanks, LeeBee

LeeBeeUSA

•5 years ago

10 Replies

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Not opened bowel for 2 weeks

Hey guys Dad was admitted into hospital with ischemic bowel, surgery was the only option which was not an option the doctors said, they discharged my dad on...

Hey guys Dad was admitted into hospital with ischemic bowel, surgery was the on...

Mustafa128h

•5 years ago

19 Replies

Struggling

Have been managing my husband’s PSP for 7 years now and watching him gradually deteriorate. At the same time managing to look after my Ma. Have been trying...

Have been managing my husband’s PSP for 7 years now and watching him gradually d...

Toddet

•5 years ago

17 Replies

Thanks to all.

Many thanks for all those who have provided comments to my initial enquiry about PSP, It will take a while for me to get up to speed.

Many thanks for all those who have provided comments to my initial enquiry about...

Seamus1mac

•5 years ago

Be the first to reply

New blog post

Hello... I am going to sign out of this group as it's nearly 2 years since my Dad died and I havent been able to sign out so far, I dont know why, I only dip...

Hello... I am going to sign out of this group as it's nearly 2 years since my Da...

Hidden

•5 years ago

6 Replies

Speech

Hi. Happy 2020 to all. Just a quick question. Sometimes, we find ourselves speaking to Nela (my mother in law) in the way you would speak to a little child?...

Hi. Happy 2020 to all. Just a quick question. Sometimes, we find ourselves spea...

cayabrewer

•5 years ago

25 Replies

“The Art of Dying Well” (or a similar book)

Has anyone read this book or something similar? I picked it up from my local library and it has been very helpful to me, I really wish I had come across it...

Has anyone read this book or something similar? I picked it up from my local lib...

Ettavb

•5 years ago

11 Replies

Pain with PSP

I have read several posts that mention a person with PSP having pain. My husband (Dx 3years ago) never has pain. In fact, pain that he used to have -- his hip...

I have read several posts that mention a person with PSP having pain. My husband...

Writingwithcats

•5 years ago

15 Replies

Hello from Indiana, USA

My husband and I were both English teachers. He is 11 years older than me and retired in 2014, a year after having five stents put in his heart. I took early...

My husband and I were both English teachers. He is 11 years older than me and re...

Writingwithcats

•5 years ago

36 Replies

Goodbye

Dear All, It is about 3 years since I last posted anything but I have read the daily news. During that time I have seen many familiar names freed from PSP/CBD...

Dear All, It is about 3 years since I last posted anything but I have read the d...

Tokki

•5 years ago

12 Replies

Saw this on another site

I believe this would only be for patients and caregivers in the US but we have many of those here. It's a paid, $500, grant to help with respite care....

I believe this would only be for patients and caregivers in the US but we have m...

Dadshelper

•5 years ago

1 Reply

being brave

You are all so brave, and an insperation to me!!!!! I have PSP. Tami

tamaradecarlo

•5 years ago

3 Replies

Medication

Hi, my husband has just been diagnosed with PSP (June 2019). We've been extremely lucky that the Occupational Health Team, Physio, Speech & Language Therapist...

Hi, my husband has just been diagnosed with PSP (June 2019). We've been extremel...

SharonandRichard

•5 years ago

12 Replies

Wonderland - Invisible Ink Menu

Perfect! Upon arrival they offered a table set with paint brushes and water (invisible ink), that we must paint to reveal our menu! Spectacular! Momma enjoyed...

Perfect! Upon arrival they offered a table set with paint brushes and water (inv...

bazooka111

•5 years ago

17 Replies

Distress and agitation

Thank you all for your responses . . . to have others respond, empathise, and suggest in itself makes such a difference to the isolation one can feel dealing...

Thank you all for your responses . . . to have others respond, empathise, and s...

redkilt

•5 years ago

Be the first to reply

Thank you everyone

Thank you so much for replying to my first post; I already feel less alone. Queen Square is totally chaotic, they don't treat you with kindness, and they don't...

Thank you so much for replying to my first post; I already feel less alone. Quee...

Gardening51

•5 years ago

7 Replies

CBD diagnosis likely

Hi all I'm 57 and feel like it's all over. I was told I have young onset vascular dementia about 2 years ago. Recently my neurologist said he thinks I also...

Hi all I'm 57 and feel like it's all over. I was told I have young onset vascula...

Upturned

•5 years ago

12 Replies

Amazon shopping fundraise for PSP

Anyone that shops on Amazon and lets be honest most of us probably do !! 0.5% donated by Amazon to PSP The more of is that do the more they will give...

Anyone that shops on Amazon and lets be honest most of us probably do !! 0.5% d...

Cazash

•5 years ago

4 Replies

The Mad Hatter brings on child-like giggle!

So while on our cruise this week, I would say this was a highlight dinner experience; "Wonderland", as in Alice in Wonderland! I had requested that Mad Hatter...

So while on our cruise this week, I would say this was a highlight dinner experi...

bazooka111

•5 years ago

11 Replies

Recently diagnosed with cbd

Hello I was diagnosed with cbd in November; I live in north London and go to Queen Square. Not pleased with them. I'd love to hear from other sufferers about...

Hello I was diagnosed with cbd in November; I live in north London and go to Que...

Gardening51

•5 years ago

11 Replies

Distress and agitation

My brother was diagnosed July 2018 with PSP - probable onset around 2014, definite signs 2016. He is now in residential care but has never come to terms with...

My brother was diagnosed July 2018 with PSP - probable onset around 2014, defini...

redkilt

•5 years ago

11 Replies

Hello all ..

Momma and I have been fighting upper respiratory issues this winter; I think we’ve been gladiators! Now ... we are breathing salt air and resting a few days in...

Momma and I have been fighting upper respiratory issues this winter; I think we’...

bazooka111

•5 years ago

21 Replies

Series on NBC

https://nypost.com/2020/01/02/zoeys-extraordinary-playlist-is-moving-tribute-to-creators-father/?fbclid=IwAR2UZjjzIAcuAI3ITXf8AjZGF8sBgnWIBPkmh7ueWlhFlBdqJ0ltiX

https://nypost.com/2020/01/02/zoeys-extraordinary-playlist-is-moving-tribute-to-...

daffodil48

•5 years ago

4 Replies

Help identify the priority research questions for PSP & CBD

Do you have any questions about PSP or CBD that you would like us to look into? Questions highlighted so far include can physiotherapy and exercise can help...

Do you have any questions about PSP or CBD that you would like us to look into? ...

HelenPSPA

Administrator•5 years ago

10 Replies

Diagnosis

My hubby saw the Neurologist for the 1st time on Monday. He is of the opinion he has Parkinsonism and not PSP. He wants him to do a trial of Co-beneldopa...

My hubby saw the Neurologist for the 1st time on Monday. He is of the opinion he...

Marcy47

•5 years ago

7 Replies

Light therapy helping Alzheimer's

Initial results from this light therapy study are encouraging with daily treatments seeing Alzheimer patients regaining memory as well as reading and writing...

Initial results from this light therapy study are encouraging with daily treatme...

HelenPSPA

Administrator•5 years ago

2 Replies

PSP represented in NBC's 'Zoey's Extraordinary Playlist'

Having #PSP included in the storyline of a mainstream sitcom is great for awareness raising. Looking forward to seeing how the condition is portrayed. The...

Having #PSP included in the storyline of a mainstream sitcom is great for awaren...

HelenPSPA

Administrator•5 years ago

3 Replies

Do they know how long they have had their disease

Amount of time,is it understood by the person with psp or CBD I was having a crappie time,just over tired and barked at my husband dose you know how long we...

Amount of time,is it understood by the person with psp or CBD I was having a cra...

Hidden

•5 years ago

6 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for January 2020

EYE SPECIALIST FOR DIAGNOSIS?

One month since my dear husband left PSP behind

Off-line communications.

Not opened bowel for 2 weeks

Struggling

Thanks to all.

New blog post

Speech

“The Art of Dying Well” (or a similar book)

Pain with PSP

Hello from Indiana, USA

Goodbye

Saw this on another site

being brave

Medication

Wonderland - Invisible Ink Menu

Distress and agitation

Thank you everyone

CBD diagnosis likely

Amazon shopping fundraise for PSP

The Mad Hatter brings on child-like giggle!

Recently diagnosed with cbd

Distress and agitation

Hello all ..

Series on NBC

Help identify the priority research questions for PSP & CBD

Diagnosis

Light therapy helping Alzheimer's

PSP represented in NBC's 'Zoey's Extraordinary Playlist'

Do they know how long they have had their disease

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive