Not opened bowel for 2 weeks : Hey guys Dad... - PSP Association

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Not opened bowel for 2 weeks

Mustafa128h
Mustafa128h

Hey guys

Dad was admitted into hospital with ischemic bowel, surgery was the only option which was not an option the doctors said, they discharged my dad on end of life care expecting him to die soon but he's been home for a month now and had a few bowel movements, don't know if he is still on his way out or if the bowel has healed by itself hence the bowel movements, but now the last time he has opened his bowels was 2 weeks ago, he has a peg and was initially on very small amount of feed just to make him comfortable but as he showed improvements I increased the feed little by little, he still isn't meeting his nutritional requirements, he is on about 700mls of osmolite a day, initially when he came home he was on 200mls. Anyone been in a similar situation? What did u do to open the bowels? I've given movicol and lactulose, but no results so far

Hope everyone else is managing OK, my prayers are with you all

19 Replies
oldestnewest

I'm sorry to hear how bad it's been for you both.

It sounds like you have been really caring and attentive. Respect.

Wishing you the best

Kevin

Mustafa128h
Mustafa128h
in reply to Kevin_1

Thanks Kevin, I try my best but I can do better, right now I feel hopeless, thank you for the support 😁

Kevin_1
Kevin_1
in reply to Mustafa128h

Feeling hopeless so often goes along with this sort of caring.

Strength to you.

Get the district nurses in to do an enema. Get them to do an emergency referral to the bladder and bowel clinic. There loads they can do, like a regular irrigation, similar to what Diana and any rich woman use to do to lose weight. I didn't get the BBC in until too late for Steve, never knew they could help. Apparently bowel problems are very normal for people with neuro problems, it's just that they don't tell anybody! There ARE things they can do, unfortunately you have to physically make them.

Sending big hug and much love

Lots of love

Anne

Mustafa128h
Mustafa128h
in reply to Heady

Great advice Anne, thank you so much, just goes to show how helpful this website is, but what makes this site what it is is all you caring loving people who are always willing to keep up your precious time for others, I'm gonna try get in contact with the BBC today!

Heady
Heady
in reply to Mustafa128h

I think you might find you have to bow and scrape to the evil witches (DN's) first. Before anybody gets on my back, I know there are some lovely ones out there, unfortunately none ever crossed my door!!!

Best of luck

Lots of love

Anne

Dad had a blocked bowel in May 2017, he had surgery and it went well. He spent 13 days in the hospital waiting for the bowel to "wake up" after surgery but his baseline never really dropped. The surgeon laid out all the concerns and different scenarios of doing or not doing the surgery beforehand.

Ron

Thank you for replying Ron, how is your dad doing now?

Dad passed away peacefully in Sept 2018.

Ron

SewBears
SewBears
in reply to Dadshelper

Ron, I’m so glad that you’re on this forum. Your replies have helped me so much! I hope that you are doing well.

Xoxo from I SewBears

I administered micro enemas which worked. The district Matron showed me how. My wife never went more than three days without a bowel movement.

Please ask the nurses to give an enema, the longer it’s left the harder the and more impacted the poo will become. My mum went five weeks and had enemas daily but it would not pass and in the end it had to be removed manually. Before it was removed she was in so much pain. However we were warned by the palliative care nurse that this could be the end for her once it passed as its very stressful on the body. Unfortunately mum passed around a week later, but at least she was no longer suffering.

Sending you loads of love.

Hi Sarah

You have been in my thoughts.

Sending hugs 🤗

Awe thank you. I’m currently over the hospital with dad as he also very poorly. I thought I was doing really well until today so had stopped taking my meds. Seems I was a little hasty so will be getting back on them. Hope you’re well xx

I'm so sorry to read this. I'm sending love you & your Dad. What is happening with your Dad?

Awe thanks for your concern, it really means a lot xx dad has been diagnosed with heart failure, fluid on chest, kidneys functioning at 41% and COPD think it’s all down to grieving as he is at such a loss. Won’t go out and appetite is practically zero. He was discharged on Friday and been referred to a community heart nurse and regular blood tests for his kidneys. He 85 and up until mum became really poorly (2 years ago) he was so active with no health issues. Poor bloke is really suffering xx

Being a carer & grieving really does take it's toll.

It sounds like a huge worry for you.

Have you both had any support for your grief?

Xx

Hello darling...it seems doctors to quick to dismiss our famalies....i am a nurse currently looking after my own dad with advanced psp. His bowels are the same and i give him a phosphate enema every 3 days with immediate effect...my suggestion to you is to seek gp advice and give the same x good luck

Thank you sharing this upsetting scenario. We aren't there yet, so I don't have any guidance to offer. But, I greatly appreciate a thought topic to file away in my mind for the future. I wish you and your father peace, comfort, clarity, and strength.

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