Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for December 2019

Palliative Care..

Hi all my lovely Mum with CBD (10th year) has been 4 weeks in hospital. She was initially admitted with abdominal blockage, then urine infection, then...

Hi all my lovely Mum with CBD (10th year) has been 4 weeks in hospital. She was ...

Hidden

•4 years ago

9 Replies

Sandy - still here with us

He has been in this transition stage for almost 48 hours. We thought he was going then. He seems peaceful and is pain free. The party went forward as planned...

He has been in this transition stage for almost 48 hours. We thought he was goin...

journeyofjoy

•4 years ago

13 Replies

I’m new to the site. My husband has CBD

I guess I’m just looking for support through this process from people that understand it better than I do. My husband was diagnosed a year and a half ago. He...

I guess I’m just looking for support through this process from people that under...

Strawhalos

•4 years ago

28 Replies

Want to take advantage of all our features? Just log in!

Been a while.

I was in the town park trying out snowshoes, never used them before. Dog and I were only ones there, nice and peaceful. Ron

I was in the town park trying out snowshoes, never used them before. Dog and I ...

Dadshelper

•4 years ago

10 Replies

Constant cough

Hello, just wondering if anyone can help. My dad hasn’t been unwell (as in cold or flu etc) but for the past few weeks he’s had a constant niggly cough. I’m...

Hello, just wondering if anyone can help. My dad hasn’t been unwell (as in cold ...

Kellsbelles

•4 years ago

12 Replies

Psp

This disease has to be the most awful frustrating ever I feel like making a record of my voice (don't do this ) do this HE WILL JUST DO WHAT EVER

This disease has to be the most awful frustrating ever I feel like making a ...

Baily2357

•4 years ago

10 Replies

Interesting Clinical Data

Hello, I don't post much but thought I'd bring this to everyone's attention. A very small biotech, Cassava Sciences, has a drug they are investigating to...

Hello, I don't post much but thought I'd bring this to everyone's attention. A ...

choclab511

•4 years ago

1 Reply

Still reading up on psp, came across this

https://www.dizziness-and-balance.com/disorders/central/movement/psp.htm

Hidden

•4 years ago

5 Replies

Pneumonia Frequency

Hello friends, Mum is in hospital again with a 3rd bought of pneumonia. The last one was only 2 weeks ago. She on meds again to clear it up and hopefully...

Hello friends, Mum is in hospital again with a 3rd bought of pneumonia. The las...

VivienandMe

•4 years ago

10 Replies

Our PSP Journey is Over

My husband Gerald lost his battle with PSP Monday afternoon with his sister, our son and myself by his side. I had stayed with him the entire night and...

My husband Gerald lost his battle with PSP Monday afternoon with his sister, our...

Jkhakh2

•4 years ago

26 Replies

Sandy is leaving PSP behind.

I thought I was one of the "new kids" on this website, that I was just getting started - sort of. Sandy is in his final decline, with no plateaus this time. We...

I thought I was one of the "new kids" on this website, that I was just getting s...

journeyofjoy

•4 years ago

40 Replies

ideas to celebrate 80th of full time carer?

Hi all, Just wondering if you could help me. Mum, who is dads full time carer is 80 on January 2nd. Had Psp never come to our family, I 'd imagine she'd love...

Hi all, Just wondering if you could help me. Mum, who is dads full time carer i...

catherine_h

•4 years ago

5 Replies

Resuscitate decision and dead bowel

My dad is in hospital, he has a dead or dieng bowel, but that's what they say from the CT scan they can't be 100%sure unless they operate but they said that is...

My dad is in hospital, he has a dead or dieng bowel, but that's what they say fr...

Mustafa128h

•4 years ago

6 Replies

A New Tradition Too

Harley and Haley are coming for Christmas this year and forever more. Harley was a little camera shy, which means I'm lousy at taking pictures. Tim

Harley and Haley are coming for Christmas this year and forever more. Harley was...

daddyt

•4 years ago

9 Replies

Brain bank donation - a positive outcome

After my husband died he donated to the Brain bank for research. I recently received feedback on the post mortem examination. This was very sensitively...

After my husband died he donated to the Brain bank for research. I recently rec...

Tippyleaf

•4 years ago

48 Replies

Tradition

The tradition I started last year.... my hummingbird is the first decoration on the tree, and will be the last off... I hope all my friends on here are doing...

The tradition I started last year.... my hummingbird is the first decoration on ...

Ratcliffe

•4 years ago

11 Replies

Advice on doctors

Dear Forum friends, First of all, thank you for all the responses to my previous post. Thank you for sharing your stories and for all the good advice. I had a...

Dear Forum friends, First of all, thank you for all the responses to my previous...

RunPeace

•4 years ago

6 Replies

Advanced symptoms after a bug

Hi, first post. My mother in law was diagnosed about 3 years ago, the last week she got a stomach bug and since then she has got much much worse, awareness has...

Hi, first post. My mother in law was diagnosed about 3 years ago, the last week ...

LeeW75

•4 years ago

10 Replies

Mum's gone

Mum passed away Thursday night in her own bed with just my husband and myself beside her. She had her wish to be at home and everyone involved in her care were...

Mum passed away Thursday night in her own bed with just my husband and myself be...

AJK2001

•4 years ago

31 Replies

Stem Cell Cure ??

is this guy a Fraud ? https://www.youtube.com/watch?v=OmdyTU0Aghg Who knows something about this thank you best regards

is this guy a Fraud ? https://www.youtube.com/watch?v=OmdyTU0Aghg Who knows some...

Adamxd

•4 years ago

12 Replies

Her favorite holiday

Christmas can be a bittersweet time of year, and it is for my sweet Momma ... this year I decided to make some new memories! We pulled out our Department 56...

Christmas can be a bittersweet time of year, and it is for my sweet Momma ... th...

bazooka111

•4 years ago

8 Replies

New to PSP and utterly confused

Dear community, My 65 year old husband was recently diagnosed with PSP. He has been present at all medical appointments, nonetheless I think he is not fully...

Dear community, My 65 year old husband was recently diagnosed with PSP. He has b...

RunPeace

•4 years ago

36 Replies

PSP - progressing right along

There's a reason they put "Progressive" in PSP. At last update, Sandy had a high fever and confusion on Thanksgiving Day. The Hospice nurse said this could be...

There's a reason they put "Progressive" in PSP. At last update, Sandy had a high...

journeyofjoy

•4 years ago

23 Replies

Given not give!!

oops title does not make sense

AliBee1

•4 years ago

3 Replies

The end may be near

I have written infrequently here but appreciate all comments. My husband was diagnosed with unspecified dementia and eventually FTD AND PSP With CBD on the...

I have written infrequently here but appreciate all comments. My husband was dia...

susantigner

•4 years ago

7 Replies

Try to cough it up Mom ...

So this is what I have been saying to Mom for the last four or five days now, "Try to cough harder Mom ... " I have done some reading on here, and trying to...

So this is what I have been saying to Mom for the last four or five days now, "T...

bazooka111

•4 years ago

25 Replies

Pain

Hi all hope that you all had a blessed and wonderful Thanksgiving. I have psp. I was wondering if anyone experiences pain?.I have continual pain in my...

Hi all hope that you all had a blessed and wonderful Thanksgiving. I have psp....

tamaradecarlo

•4 years ago

11 Replies

My daddy grew his wings

Hello all, On Friday 29th November, at 5pm, at home and after another bout of aspiration pneumonia...I watched my dad take his final breath. After 8 years of...

Hello all, On Friday 29th November, at 5pm, at home and after another bout of as...

daddysgirl1916

•4 years ago

46 Replies

Pet Therapy - 1

Too bad we can only put one photo at a time. This is Becky my feline therapist. River is the Golden in the first post. Tim

Too bad we can only put one photo at a time. This is Becky my feline therapist. ...

daddyt

•4 years ago

6 Replies

Pet Therapy

Pet Therapy... the best thing.

daddyt

•4 years ago

10 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(134)

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2019

Palliative Care..

Sandy - still here with us

I’m new to the site. My husband has CBD

Been a while.

Constant cough

Psp

Interesting Clinical Data

Still reading up on psp, came across this

Pneumonia Frequency

Our PSP Journey is Over

Sandy is leaving PSP behind.

ideas to celebrate 80th of full time carer?

Resuscitate decision and dead bowel

A New Tradition Too

Brain bank donation - a positive outcome

Tradition

Advice on doctors

Advanced symptoms after a bug

Mum's gone

Stem Cell Cure ??

Her favorite holiday

New to PSP and utterly confused

PSP - progressing right along

Given not give!!

The end may be near

Try to cough it up Mom ...

Pain

My daddy grew his wings

Pet Therapy - 1

Pet Therapy

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive