Resuscitate decision and dead bowel - PSP Association

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Resuscitate decision and dead bowel

Mustafa128h profile image
6 Replies

My dad is in hospital, he has a dead or dieng bowel, but that's what they say from the CT scan they can't be 100%sure unless they operate but they said that is not an option, they are asking me about resuscitation and what they wud want us to do, they obviously gave their opinion but wanted to know if any of you guys were in that situation where they did resuscitate and what was the outcome, did they came back and were alot worse than before or did they seem kinda of the same

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Mustafa128h profile image
Mustafa128h
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6 Replies
enjoysalud profile image
enjoysalud

Mustafa, I would ask your dad what HE wants....along with sharing with him what the doctors have predicted.

Dadshelper profile image
Dadshelper

I was in the same situation more or less with Dad. His bowel got kinked in a pocket created by a femoral hernia. It was 100% blockage. He would have gone sepsis and died real quick. I was given the options and decided on doing the surgery since it was not related to the CBD. If he didn't make it off the operating table or if there was a major decline I had done everything I could.

Ron

Railfan profile image
Railfan

I have Crohn's Disease and Ankylosing Spondylitis. I've had both far longer than PSP. In my experience, I would treat something not related to the disease if it increases the quality of life or is a normal function of life. I treat my Crohn's Disease with medication currently but would have surgery for a bowel resection should it become necessary. In this case it would increase the quality of life.

The questions to ask the doctor is how likely is this to increase the quality of life and is it related to the disease or have some other underlying cause. If possible the answers should be passed on to the patient and, if they can communicate their wishes, let them make the choice.

knitting62 profile image
knitting62

I have CBS which is very similar to PSP 'a cousin 'of this horrible disease and although I am in the early stages of the disease, I have made up my mind that I don't want to be resuscitated as you have to think about quality of life

easterncedar profile image
easterncedar

So sorry you and your father are dealing with this. It's a sad and difficult situation. General anesthesia and the way the body is chilled during surgery very often trigger significant mental deterioration in patients with or at risk of dementia. That's one consideration.

The problem of intestinal blockage has come up before here. It is a not uncommon effect of psp, and seems to me one of the worst. If the doctors can't operate, then keeping your father out of pain may be the best you can hope for. Resuscitation without treatment makes no sense to me, just making the person die twice.

Wishing you peace.

Ec

aliciamq profile image
aliciamq

So sorry, Mustafa~the best to your dad and to you.

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