Still reading up on psp, came across this - PSP Association

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Still reading up on psp, came across this

5 Replies

dizziness-and-balance.com/d...

5 Replies
SewBears profile image
SewBears

Lots of information! Thank you for sharing this.

messier profile image
messier

Lots of information but not entirely consistent with other information. I followed the link through to the CBD (or CGBD as they call it) and there's virtually nothing on initial asymmetrical presentation. Everything else I've seen suggests that the early distinguishing symptom for CBD is contracting muscles in a limb (usually arm) on one side only. I noticed this and diagnosed my mother from it well before it progressed onto severe lack of balance, gait problems and eye movement problems.

rriddle profile image
rriddle

Despite the date at the top and bottom of this webpage and reference to an article published in 2019 (on genetics), this webpage is woefully out dated. It still mentions the davunetide study, which ended years ago. There are lots better resources out there.

in reply to rriddle

Please do share for the newbies, knowledge is power.

Dee

rriddle profile image
rriddle

Here's a list of better resources on PSP:

brainsupportnetwork.org/edu...

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