Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for March 2019

PSP Fundraising

A PSP fundraiser doesn't have to be challenging to start. I realize many caregivers are overwhelmed with their circumstances. Family members such as adult...

A PSP fundraiser doesn't have to be challenging to start. I realize many caregiv...

daddyt

•5 years ago

3 Replies

Sudden hard lumps like cramps in stomach

This happens if I move a certain way, like buckle over a bit. The hard lump/s start to come up in my stomach it’s painful and slowly dissipates as I change my...

This happens if I move a certain way, like buckle over a bit. The hard lump/s st...

Kathleen22

•5 years ago

3 Replies

What should I use?

Larry is having trouble drinking with a straw. If I get him started by using the straw with my finger over the top to trap liquid then put it in his mouth he...

Larry is having trouble drinking with a straw. If I get him started by using the...

Hidden

•5 years ago

25 Replies

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Treating PSP, MSA, and CBD" - Webinar Recording, Notes, and Resources

https://youtu.be/ePKXO1UPOlw

Christine47

•5 years ago

14 Replies

Getting Medical Equipment in the USA

Lately I've been seeing posts where people are struggling to find and/or afford equipment. Dad was fortunate in a sense he was a veteran and got into the VA...

Lately I've been seeing posts where people are struggling to find and/or afford ...

Dadshelper

•5 years ago

2 Replies

Specialist visit.

Off to see the neurologist today for our first visit post diagnosis last May. Anything I should ask? Apart from medication adjustments? Juliet

Off to see the neurologist today for our first visit post diagnosis last May. An...

JCRy

•5 years ago

13 Replies

Bedsores

Any lasting remedy for bedsores? I used Duoderm patches but they just work loose!

Any lasting remedy for bedsores? I used Duoderm patches but they just work loose...

Bhakthan

•5 years ago

24 Replies

Living with PSP

I was diagnosed with P.S.P in Sept 2018 and just today attended my first PSPA meeting at Liner Hotel which I found quite daunting but informative. I am still...

I was diagnosed with P.S.P in Sept 2018 and just today attended my first PSPA me...

Fanofwillie

•5 years ago

30 Replies

Coughing and mucus build up remedy!!!!

Hi all, I just thought I’d share an amazing patch that helped T with mucus build up in his throat due to swallowing problems. It’s called SCOPODERM...

Hi all, I just thought I’d share an amazing patch that helped T with mucus buil...

Megabrew88

•5 years ago

35 Replies

Psp vs Anastasia

My wife died from Psp. She had 4 shoulder operations over a 5 year span. The last one in Dec 2015. When she came home she never recovered. It took doctors...

My wife died from Psp. She had 4 shoulder operations over a 5 year span. The l...

Makua

•5 years ago

12 Replies

mother with PSP in Italy.

Dear all, my mother has a diagnosis of PSP. It is slowly progressing. She has a carer living with her. I am in London, UK, and cannot go back and live there. I...

Dear all, my mother has a diagnosis of PSP. It is slowly progressing. She has a ...

Zibo

•5 years ago

9 Replies

PSP, CBD and MSA need our support

Awareness creates Understanding. Understanding creates Support. Support furthers Research and Partnerships. Partnerships work towards Treatment-Cure....

Awareness creates Understanding. Understanding creates Support. Support furthe...

daddyt

•5 years ago

Be the first to reply

PSP, CBD and MSA need our support - posting for group member James Moffat

Awareness creates Understanding. Understanding creates Support. Support furthers Research and Partnerships. Partnerships work towards Treatment-Cure....

Awareness creates Understanding. Understanding creates Support. Support furthe...

daddyt

•5 years ago

2 Replies

Speech

My husband searches for the right word to communicate and is often at a loss which causes frustration to him and the care giver,but it compounds the problem...

My husband searches for the right word to communicate and is often at a loss whi...

baddisease

•5 years ago

21 Replies

Repeating

Hi, with all I have read and found out about, I was under the impression that dementia was not a part of PSP, unless it was diagnosed with dementia. So Colin...

Hi, with all I have read and found out about, I was under the impression that de...

Helen119

•5 years ago

60 Replies

Woozy

Does anyone describe the feelings of PSP as Woozy? Drs will not definitively say if my friend has PSP but they did say it was a possibility. Sadly, she has...

Does anyone describe the feelings of PSP as Woozy? Drs will not definitively sa...

Mybeautifulfriend

•5 years ago

20 Replies

Holiday insurance

Can anyone suggest a travel insurance company that deals with PSP patients .

Mags061155

•5 years ago

7 Replies

Is the care you are getting good enough?

For about a year now the Care Quality Commission has been running a campaign to encourage people to report poor care to them. The CQC is the inspectorate...

For about a year now the Care Quality Commission has been running a campaign to ...

Kevin_1

•5 years ago

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Four years

Larry’s birthday today. He’s 71. I was 71 last Friday. My care giving started in March of 2015. We both had a cold or something and it hit us hard beginning...

Larry’s birthday today. He’s 71. I was 71 last Friday. My care giving started i...

Hidden

•5 years ago

22 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2019

PSP Fundraising

Sudden hard lumps like cramps in stomach

What should I use?

Treating PSP, MSA, and CBD" - Webinar Recording, Notes, and Resources

Getting Medical Equipment in the USA

Specialist visit.

Bedsores

Living with PSP

Coughing and mucus build up remedy!!!!

Psp vs Anastasia

mother with PSP in Italy.

PSP, CBD and MSA need our support

PSP, CBD and MSA need our support - posting for group member James Moffat

Speech

Repeating

Woozy

Holiday insurance

Is the care you are getting good enough?

Four years

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive