Psp vs Anastasia

[Makua]

My wife died from Psp. She had 4 shoulder operations over a 5 year span. The last one in Dec 2015. When she came home she never recovered. It took doctors about 1 1/2 years to diagnose her with PSP. I believe all the Anastasia played a part in her demise. She passed away in Nov 2018

[aliciamq]

Anesthesia has been making a mess of my poor 93 yr. old father, who has had to have hip surgery. Each time he has had a surgery he gets worse and worse cognitively.

[honjen43]

Welcome Makua. So sorry to hear you have lost your wife very recently to PSP.

You will find help here as there are a number of us who are going/have gone through the grieving process. Where do you live? There are people here from all over the world. I live in New Zealand.

I lost my husband to CBD 2 1/2 years ago now, but I am still here, looking for answers and trying to help others.

My husband also had a few operations. I am not sure whether the anaesthesia contributed or not, but i seem to remember there are posts on this forum that asked similar questions to yours. If you search for "anaesthesia " at the top of the PSP page, you will be able to read the comments. There may be references too. I had difficulty spelling the word correctly, too!

I am currently investigating the process of shoulder surgery too, so gives me food for thought!

Hugs

Jen xxx

[SewBears]

Hi Makua,

I’m sorry for the loss of your wife. I hope she went in peace. This forum can be very helpful. Thank you for reaching out. Where are you located? I’m in the US. It’s nice to meet you but I wish it were under better circumstances.

Excellent question about Anastasia. I’ve often wondered the same thing. Each time my husband went under the knife he came out a little bit more goofy. I try not to compare him to a Steven King novel known as “Pet Sematary”; where he returns home with a gravelly voice. I remember him on the gurney after one of his operations and he kept complaining about the ugly artwork, of course he was looking at white ceiling tiles. I say this in fun because it’s about the only way that I can deal with it. Anyway, I think you might be onto something here...

Sending hugs from I SewBears

[Makua in reply to SewBears]

Thank you for your kind words. I live in Southern California.

[SewBears in reply to Makua]

I’m in Las Vegas NV, baby! 😀 How far south in CA? I grew up near San Diego.

[Makua in reply to SewBears]

I moved to a city called Menifee, CA

in 2017 so we could be closer to my wife's family.

[Hidden]

I’ve heard general anesthesia might be the catalyst for neurological diseases. It doesn’t help.

[Dadshelper]

General anesthesia can pose a slight risk for anyone, those with neurological diseases are at greater risk. When dad had surgery for a 100% blocked bowel the surgeon made it clear that dad 1) stay at same baseline 2) baseline could drop by any untold amount 3) not make it off the operating table. Being the PoA and Healthcare I opt'ed for the surgery, he would have gone septic and died within a few days without it. He did not have any downgrade of baseline, thankfully.

Ron

[raincitygirl]

I'm sorry for your loss, Makua. I hope in your lifetime we at least get a handle on this devastating disease. Wouldn't that be something? Even if too late for our own beloveds.

Take care,. Anne G.

[Katiebow]

My husband broke his hip a year before he died and they did a partial hip replacement using an epidural as they did feel that anaesthetic was safe for him. He felt no pain and the sedative they used was strong enough to take him to the land a fairies. His main probem was the UTI he develpoed, probably the result of being catheterised.

Kate xxx

[Bettina545]

So sorry for your loss and thank you for the info

Hugs!

[LuisRodicioRodicio]

Our experience:

A serious fall with serious consequences (hospitalization, surgical intervention, strong medication, etc.) as well as a serious illness (pneumonia, severe flu, etc.) are typical situations that can trigger a fatal process. It is not uncommon for the PSP patient to overcome these types of situations - but these situations once overcome are often accompanied by some increase in the PSP symptoms and a decrease in the quality of life.

Hugs.

Luis