Bedsores: Any lasting remedy for bedsores? I... - PSP Association

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Bhakthan profile image
24 Replies

Any lasting remedy for bedsores? I used Duoderm patches but they just work loose!

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Bhakthan profile image
Bhakthan
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24 Replies
Kevin_1 profile image
Kevin_1

Hi Bhakthan

You are probably way ahead of me on this, but I will share the little I know until someone else comes along to answer you question more explicitly.

We have been lucky so far as Liz is on a pressure reducing mattress which uses an air pump to constantly change where the bodies pressure is on the mattress. Also barrier creams to protect the body from incontinence inflammation of the skin.

This article mentions a few intriguing products which I have not come across, like seaweed treatments to speed up healing. Being an NHS site everything here is tried and tested.

nhs.uk/conditions/pressure-...

These are some ways of keeping the pressure off the sore area. I expect these products can be found much cheaper elsewhere though.

nrshealthcare.co.uk/bedroom...

Best to you

Kevin

Lizzie34 profile image
Lizzie34 in reply to Kevin_1

Duroderm is good, if placed on correctly. I guess they will release sometimes.best kept on as long as possible, days!

NannaB profile image
NannaB

Medihoney Barrier Cream helped but apparently it is very expensive. I asked the district nurse for some and she said I probably wouldn’t get it for my husband. I did however, which stopped his nasty sore from getting bigger. Not wanted by everyone but having a PEG fitted cleared his sore in two weeks and from then on his skin was like a babies. Before, he wasn’t getting enough nutrition to keep his body “healthy” enabling his skin to break down. One of the many benefits of the PEG but an individual choice.

XxxX

Bereaved2017 profile image
Bereaved2017 in reply to NannaB

The doctors didn't explain it like this to my dad, back when daddy was in the beginning stages, and if they had he might have had a different opinion about the PEG. Thank you for sharing that information, it's very interesting and good to know. If it'd been up to ME, Daddy would've had a PEG and could still be here with us, waiting for a cure!!!!! xxx to you NannaB!!

NannaB profile image
NannaB in reply to Bereaved2017

Your dad made the decision and I think it is so important that those living with PSP make the most important decision they’ll ever have to make......how much intervention they want at the end and when they have had enough. Colin chose the PEG but also chose when he no longer wanted to be fed through it. A decision he was at peace with.

They are both at peace now Bereaved2017 so those of us left behind will carry on hoping, praying for a cure to stop the suffering in the future.

XxxX

Lizzie34 profile image
Lizzie34 in reply to NannaB

Oh dear, am sorry for your struggles!

Dadshelper profile image
Dadshelper

Dad like Liz was on a pressure point reducing mattress. He didn't get any bedsores until the last 8-10 days. The nursing home staff used an ointment (I don't know what it was) covered with non-stick gauze then a foam type pad over all that. If you can readjust him every couple hours with pillows, blankets, towels.. whatever works for you. Dad did have a pair of padded booties to prevent heel sores but he hated them and somehow got them off every night even though velco held them on.

Ron

Bereaved2017 profile image
Bereaved2017 in reply to Dadshelper

Once my dad could no longer move on his own, we caregivers rolled him in bed from one side to the other every few hours, 24-7. And we did the booties, the cream, the thick foam bandages that went around the wound, and daily bed baths. He was bedbound for over a year but didn't get sores until the last week, except the first time which was when we became educated about the dangers of the sores, which can get very bad and the infection can spread inside the body. I'm sorry to tell you... this is yet another very difficult battle all on it's own, that you and your loved one need to fight. Prayers said.

Megabrew88 profile image
Megabrew88

Hi Bhaktan,

We have just treated T’s first bout of bedsores with a herbal ointment called LUCAS PAWPAW ointment and it worked wonders! Even the carers were amazed they said they’ll recommend it to their clients.

We used sudocream and proshield per carers recommendation BUT it made it worst, until we used our own Pawpaw cream. It’s made of green papaya. It’s made in Australia BUT readily available online.

Also an air mattress would help.

Hope this helps!

Mx

Megabrew88 profile image
Megabrew88 in reply to Megabrew88

Also you need to the wound air, so patches may NOT be ideal!

Bhakthan profile image
Bhakthan in reply to Megabrew88

Thanks a million for the inputs. When I applied turmeric powder with betnovate cream, the sores all but disappeared. We also use an airbed. Now suddenly there has been a recurrence. Yes! I'll try the papaya cream, which I will make at home.

Bhakthan profile image
Bhakthan in reply to Megabrew88

Thanks for the suggestion. Since I'm in India, and since I have a Papaya tree at home, I made a paste of ground raw papaya flesh, turmeric and coconut oil and applied on the wound. The sore healed quickly. Of course I use an air bed with pump which alternates the pressure points every 7 minutes. Now the bedsores are not happening with same frequency and intensity! Thanks for the PawPaw suggestion!

Megabrew88 profile image
Megabrew88 in reply to Bhakthan

Oh you’re welcome!

So glad it works for you too!

Bhakthan profile image
Bhakthan in reply to Megabrew88

Its just magical! Thanks!

Sam_S profile image
Sam_S

Hi Bhakthan,

Re position the patient every 2 hours.

To cure a bed sore, use Mepilex border Ag dressings. Change the dressing every 3 days until the sore has healed. They work really good but they are expensive.

Hope this helps.

Sam

Karynleitner profile image
Karynleitner

We have tried many things and still struggle . The low air loss , alternating mattress, was by far the greatest help. In the US I had to purchase it myself after the doctors suggestion. Although it was costly, It was by far the most important thing I did for him.

We continue to struggle. His time in a chair ( any chair, regardless of specialized roho cushion) definitely bothers his bottom. We limit that. Mediplex and seaweed bandages did not do much. I have a “Touchless Care zinc spray “ that is by far the best barrier spray I have used. Good luck. It is a constant battle for us.

Hi Bhakthan!

The first thing is to repair the wounds, which is not an easy task.

Once the wounds have been repaired or before they occur (first a reddish spot usually appears), the CORPITOL preparation of laboratories URGO (France) does an excellent job.

Hugs and luck.

Luis

Bhakthan profile image
Bhakthan

Thanks for the info! Have started applying turmeric powder and it's healing up fast!

Tttp profile image
Tttp

Good morning hospital bed pressure marrress with air pump, does a great job so they don’t get bed sores, also use a cream called healing cream, put it on his heals, elbows hips and back everyday, he’s been mostly in bed, only up a few hours a day, and going into his ninth year with PSP, thankfully never a pressure sore, they are very painful, hope this works for you. Nettie

Mcates profile image
Mcates

Please ask your district nurse to attend. If the wound is open it should be covered. Left open leaves wound prone to infections. Ag dressing should only be used if the wound is infected and only for two weeks at a time. You if you can get an air mattress (dns can order) you shouldnt need to alternate position. Latest research has shown it is more detrimental than beneficial particularly over night disturbing sleep. Re positioned off the sore once or twice a day should be enough if they have a good mattress. I’m

A community Matron and see lots of pressure ulcers. If still able to eat protein is very good for wound heeling. As Kevin

Said we use a lot of sea weed dressings. They are known as Alginates. Honey dressings are also good for infected wounds but can sometimes cause the wounds to sting. Hopefully it will clear up quickly. X

crab2093 profile image
crab2093

thankyou. .. preparation is maybe the way to go

Tundrahawk profile image
Tundrahawk

We found the thin patches worked loose also. We had much better results using the thicker duoderm patches

Bhakthan profile image
Bhakthan

Will try the thicker variety next time!

DenB profile image
DenB

My husband only started to get pressure sores last year. An airflow mattress, Tegaderm foam adhesive dressings and PROSHIELD Plus skin protectant have kept any reacurring pressure sores at bay.

Denise x