Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for December 2018

Hopeful

Many on the site are aware that I'm a participant in Biogen Passport? clinical drug trial. This is an infused antibody drug that essentially helps with the...

Many on the site are aware that I'm a participant in Biogen Passport? clinical d...

daddyt

•5 years ago

30 Replies

Contacting a Hospice

I contacted my local hospice, the Severn Hospice at Shrewsbury, yesterday afternoon. A nurse from their outreach team phoned back today and gave me a direct...

I contacted my local hospice, the Severn Hospice at Shrewsbury, yesterday after...

pandyjohn

•5 years ago

8 Replies

Mum PSP , continuing health care.

Hi all , mum died last week and we did get continuing health care for her last six months. Today CHC phone me and ask if I would still like to appeal for the...

Hi all , mum died last week and we did get continuing health care for her last s...

Kaylewis

•5 years ago

15 Replies

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Dad

As you know I dont post on here very often I just update now and again....find it hard to respond to peoples post seeing all the different stages on here I...

As you know I dont post on here very often I just update now and again....find i...

Nemo14

•5 years ago

11 Replies

Anyone watching Care on BBC1 ?

I’m watching it, and oh my god, the home truths it’s hitting me with. Every scene is I did that, that happened with David’s care package, or my mums care...

I’m watching it, and oh my god, the home truths it’s hitting me with. Every sce...

Ratcliffe

•5 years ago

12 Replies

Urinary incontinence in PSP

I’m worried about my husband’s sudden lack of bladder control. He seems not to be able to control when or how he urinates and I am constantly cleaning the...

I’m worried about my husband’s sudden lack of bladder control. He seems not to ...

Ruth1921

•5 years ago

11 Replies

Anxiety and irrational thinking/ hallucinations

Hi everyone, my mom is 70 and has been living with progressive (psp) Parkinson’s for about 4-5 years. It started with blank stares and stroke like symptoms...

Hi everyone, my mom is 70 and has been living with progressive (psp) Parkinson’...

Tina0120122015

•5 years ago

15 Replies

Very upsetting day

Forgive me, for not replying individually, all your replies, were honest correct and helpful, this morning I am acting at being normal, the hospice rang and...

Forgive me, for not replying individually, all your replies, were honest correct...

Servena03

•5 years ago

5 Replies

Time

I have the best mother in law in the whole wide world. PSP has stolen her away and I don't know what to do for her. I sit with her all day at the hospital...

I have the best mother in law in the whole wide world. PSP has stolen her away ...

greenfarmer

•5 years ago

16 Replies

Speech device

Hi everyone, Can anyone recommend a text to speak device please as my dad’s speech got worsened so he can hardly say a word? I was wondering if there is any...

Hi everyone, Can anyone recommend a text to speak device please as my dad’s spee...

Aslin

•5 years ago

14 Replies

Very upsetting day

Hi my friends, it been a exhausting day urgent doctors appointment, then long call from our PSP specialists, then help assistance to make appointment, plus you...

Hi my friends, it been a exhausting day urgent doctors appointment, then long ca...

Servena03

•5 years ago

12 Replies

Leg held in the air

My husband for the last couple of months, has been lifting his left leg when resting, as per the attached photo. He can lie like that for at least half an hour...

My husband for the last couple of months, has been lifting his left leg when res...

nayook

•5 years ago

16 Replies

Near the end

The Hospice nurse told me yesterday that dads bouts of unresponsiveness is him detaching from this life. So here comes the flood of emotions, relief that this...

The Hospice nurse told me yesterday that dads bouts of unresponsiveness is him d...

tlovins

•5 years ago

20 Replies

Mum 81 PSP.

Hi everybody mum died peacefully yesterday afternoon 7 days after her swollow stopped working. On the day her swollow stopped she was given a syringedriver to...

Hi everybody mum died peacefully yesterday afternoon 7 days after her swollow st...

Kaylewis

•5 years ago

26 Replies

U.S. TV show Chicago Med.

If you watch it and haven't seen the Dec 5th episode, stop reading :) A lady was brought in the ER after stabbing an intruder in her home. Long story short,...

If you watch it and haven't seen the Dec 5th episode, stop reading :) A lady wa...

Dadshelper

•5 years ago

1 Reply

Coconut Oil

Does anyone have an opinion on the benefits of coconut oil in the diet?

bazooka111

•5 years ago

3 Replies

Pain management

My husband has a lot of pain in his neck, and limited mobility. Some of that is due to PSP (he is in his 6th year), some of it due to arthritis. Has anyone had...

My husband has a lot of pain in his neck, and limited mobility. Some of that is ...

Khartt

•5 years ago

7 Replies

Celebrity electric Dual Rise and Recliner chair for sale

For sale. £400 Celebrity Electric rise and recline leather chair, as new had little use. Buyer would have collect. Merseyside UK

For sale. £400 Celebrity Electric rise and recline leather chair, as new had l...

iris2

•5 years ago

7 Replies

Leaning

Can anyone tell me if your loved one leans back or to the side inconsistently and if so how you are dealing with this?

Can anyone tell me if your loved one leans back or to the side inconsistently an...

Boyce3600

•5 years ago

25 Replies

I KNOW!!!

Dear World, I certainly understand there is no cure for neurodegenerative diseases. I also understand the philosophy of evidence based treatments. But someone...

Dear World, I certainly understand there is no cure for neurodegenerative diseas...

StayAtHomeDaughter

•5 years ago

11 Replies

Mum just been diagnosed with PSP

Hi all my mum 83 was diagnosed with PSP 2 weeks ago. She was initially told she had Parkinson's (this is common from what I've read) 3 years ago, she has been...

Hi all my mum 83 was diagnosed with PSP 2 weeks ago. She was initially told she...

corkywool

•5 years ago

8 Replies

We Give Praise

Mom and I sat on the stern of that ship and watched some of the most beautiful sunsets together last week. As we sat quietly, she looked at me and said, I just...

Mom and I sat on the stern of that ship and watched some of the most beautiful s...

bazooka111

•5 years ago

8 Replies

Hit my target ❤️

I have not posted in a long time 😣 I lost my dad to CBD 2 years ago and not a day goes by where I don’t think about him. For my birthday I asked for donations...

I have not posted in a long time 😣 I lost my dad to CBD 2 years ago and not a d...

Rologirl79

•5 years ago

7 Replies

Choking and disease progression

Hi everyone, I have a question for the more knowledgeable of you ( I am still new to this really) . My mum has PSP and I think is probably in mid stage of the...

Hi everyone, I have a question for the more knowledgeable of you ( I am still ne...

Denisejoy1

•5 years ago

9 Replies

An amazing week at sea!

A week that I will never forget, nor regret! First, swimming lessons to overcome fear of the water, allowed us to enjoy a lot of time in the hot tub at sea!...

A week that I will never forget, nor regret! First, swimming lessons to overcom...

bazooka111

•5 years ago

12 Replies

Important Tips / Lessons Learnt in Life & Death of Mom with PSP

This forum has been my single best silent support & resource in my journey caring for my mom with PSP. I can't thank enough the amazingly kind members on this...

This forum has been my single best silent support & resource in my journey carin...

abilitydesigns

•5 years ago

17 Replies

Clearing phlegm in throat

Mum was advised to have a peg fitted but decided against it. She is still managing to eat (obviously with choking) however she is choking a lot on her phlegm...

Mum was advised to have a peg fitted but decided against it. She is still managi...

Sarah1972

•5 years ago

3 Replies

New to PSP

Hello, I was diagnosed with PSP 3 days ago. It took a lot of test and time. I am feeling very upset and frightened. Being new any help, recommendations,...

Hello, I was diagnosed with PSP 3 days ago. It took a lot of test and time. I ...

Butterflyfr

•5 years ago

61 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2018

Hopeful

Contacting a Hospice

Mum PSP , continuing health care.

Dad

Anyone watching Care on BBC1 ?

Urinary incontinence in PSP

Anxiety and irrational thinking/ hallucinations

Very upsetting day

Time

Speech device

Very upsetting day

Leg held in the air

Near the end

Mum 81 PSP.

U.S. TV show Chicago Med.

Coconut Oil

Pain management

Celebrity electric Dual Rise and Recliner chair for sale

Leaning

I KNOW!!!

Mum just been diagnosed with PSP

We Give Praise

Hit my target ❤️

Choking and disease progression

An amazing week at sea!

Important Tips / Lessons Learnt in Life & Death of Mom with PSP

Clearing phlegm in throat

New to PSP

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive