Very upsetting day: Forgive me, for not... - PSP Association

PSP Association

9,626 members11,552 posts

Very upsetting day

Servena03 profile image
5 Replies

Forgive me, for not replying individually, all your replies, were honest correct and helpful, this morning I am acting at being normal, the hospice rang and confirmed they will make our family appointment whilst my son is home from America at christmas, that's so helpful, my daughter is ringing him right now to inform him that we will be having a chat with John on how his health is deteriorating, I can't do it myself, I will be laying by his side holding his hand, we've been told expect a couple of months, how do we all keep taking this pain, you wonderful people who has gone through this and are still with us here, it seems it never goes away for you, bless you all thank you, lots of love xxx

Written by
Servena03 profile image
Servena03
To view profiles and participate in discussions please or .
5 Replies
enjoysalud profile image
enjoysalud

Blessings and prayers!

Some of us are on the other side of losing a loved one to PSP. In my case it was my beloved, barely 55 year old son, May 4, 2017. I, for one, remember that I often barely had time to eat, let alone respond to other than my son (do not spend worry on not responding to each of us).

I cared for my son at his home along with paid care-taking. I am glad that you will have strong support from your children.

19 months later I still grieve, but have a different prospectus on all that happened, and each day I move closer to letting go.

Los Angeles, CA, USA

You are wellcome.

A big hug.

Luis

Hiking13 profile image
Hiking13

Take good care of yourself too in all of this sending you hugs you are doing brilliantly

Love Sarahxxx

doglington profile image
doglington

Don't worry about replying individually.

We cope because we have to - and we focus on our loved ones.

I found letting him go incredibly hard. He was in such a poor state that it felt cruel to hold on.

After he died it was / is hard because I remember him from before PSP.

Its tough but PSP teaches you to be tough.

Big hug from Jean x

cameoboy11 profile image
cameoboy11

Take care of yourself and big hugs

Jo x

Not what you're looking for?

You may also like...

Very upsetting day

Hi my friends, it been a exhausting day urgent doctors appointment, then long call from our PSP...
Servena03 profile image

Very upsetting day

Our day started well, G had a reasonable night, so for a change I got up not feeling tired. The...
ellie7676 profile image

Upsetting day

Not sure how to handle this problem. It was my day to attend the hospice today. Sitter was due and...
jzygirl profile image

Progressing very rapidly

Hi my brother Larry having PSP for almost 9 years is on a rapid decline, last 4 moths but now the...
Tttp profile image

Sad day

Hi everyone, my dad lost his battle with PSP yesterday although we prayed for his suffering to end...
twinies profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.