Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2015

Past thoughts

Just sitting her thinking about the past, when the children were born, the love we felt for them, the times things went wrong for them, and we cried with them,...

Just sitting her thinking about the past, when the children were born, the love ...

Yvonneandgeorge

•9 years ago

PEG tube and deep throat suctioning, alternative?

Hi My dad started choking on his own saliva 2 days ago and I had to rush him for throat suctioning - they had to do it 3 times and it was horribly painful for...

Hi My dad started choking on his own saliva 2 days ago and I had to rush him fo...

•9 years ago

WTH IS GOING ON

They wouldn't let me on the site and then said my email was not available. Of course not they already have it. Has been a very hectic and stressing week so...

They wouldn't let me on the site and then said my email was not available. Of co...

•9 years ago

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CHC🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉

Well, despite all my cynical views, we have been awarded CHC, at the first time of asking!!! I have agreed a care plan with the VERY NICE lady, who got this...

Well, despite all my cynical views, we have been awarded CHC, at the first time ...

•9 years ago

Foot pain

I'm under 12 but I need to know what it is :a girl at school kicked me at the top of me foot for 3 days I am getting bad pain on ma foot dies anyone know what...

I'm under 12 but I need to know what it is :a girl at school kicked me at the to...

Alishastamp29605

•9 years ago

You will NOT believe this!

As you know Bill has just come out of hospital and since we were not granted CHC we are self funding. Foolishly I let our Borough Council sort out the care...

As you know Bill has just come out of hospital and since we were not granted CHC...

•9 years ago

George's Poem!

Hi everyone, especially GeorgePa! Beautiful poem George, so painfully true. One thing I would like to share with everyone, is the result of S's recent...

Hi everyone, especially GeorgePa! Beautiful poem George, so painfully true. On...

•9 years ago

Asthma attacks/fighting the caregiver

Hi all, I'm new here. My dad is 91 and was diagnosed with Parkinsonism maybe 7 years ago. His latest neurologist says his Parkinsonism may be PSP. He can no...

Hi all, I'm new here. My dad is 91 and was diagnosed with Parkinsonism maybe 7 y...

•9 years ago

holidays

morning everyone on a brighter note we have just had a glorious week in pendine in a specially adapted caravan for wheelchairs! beach ten minutes flat walk few...

morning everyone on a brighter note we have just had a glorious week in pendine ...

•9 years ago

carers !!!!!

God i want to scream!!! my husband is now confined to bed and his carers are now coming in 4 times a day.The idea is to re-position him due to pressure sores....

God i want to scream!!! my husband is now confined to bed and his carers are no...

•9 years ago

Sneezing and Runny Nose

My husband is diagnosed with PSP. Every time he eats, his eyes water, sneezing fits, and his nose runs. Sound familiar? Any suggestions?

My husband is diagnosed with PSP. Every time he eats, his eyes water, sneezing ...

Greenkerrycounty

•9 years ago

Sadness

Where have you gone Behind those eyes that embraced life. You are slipping into another world One where I cannot follow. The threads that have joined...

Where have you gone Behind those eyes that embraced life. You are slipping in...

•9 years ago

Atissue! atissue!

2000 tissues in fact. Kleenex man size are on offer so I bought all they had left. The checkout girl asked me if I was selling them on to make a profit. She...

2000 tissues in fact. Kleenex man size are on offer so I bought all they had le...

•9 years ago

Incontinence - the big bane!

Hey all, I have been trying without luck yet to find where someone here wrote about a urine collection device that is like the conveen sheath, except made of...

Hey all, I have been trying without luck yet to find where someone here wrote a...

•9 years ago

My wonderful husband passed

My beautiful man person, my husband, my love passed away Wednesday Sept 30th, 2015. He was diagnosed with CBD in 2013, May and again in 2013, September. He...

My beautiful man person, my husband, my love passed away Wednesday Sept 30th, 20...

•9 years ago

CHC -The outcome

Yes of course! You were right! We were rejected because Bill's condition was not "complex" enough. I would like them to spend time with us to see how "complex"...

Yes of course! You were right! We were rejected because Bill's condition was not...

•9 years ago

Newby

Hello everyone My name is Ellie , my husband Graham has C.B.D diagnosed in June he has been ill for 2years,then in January he lost his speech and had problems...

Hello everyone My name is Ellie , my husband Graham has C.B.D diagnosed in June...

•9 years ago

Hospital

George has had a bad few days, we thought he had a urine infection, first doctor gave him medication without seeing him, things went from bad to worse, lovely...

George has had a bad few days, we thought he had a urine infection, first doctor...

Yvonneandgeorge

•9 years ago

Mucus suction machine?

Hi Does anyone have experience with a mucus suction machine? I bought one for my dad, who is in advanced PSP stage and has a PEG tube (this one, but under a...

Hi Does anyone have experience with a mucus suction machine? I bought one for ...

•9 years ago

Sputum excessive - suggestion

Hi (My last post got deleted, not sure why) My dad is advanced stage PSP - he is bed bound and has a PEG tube Since getting the PEG tube, he has lost a lot...

Hi (My last post got deleted, not sure why) My dad is advanced stage PSP - he ...

•9 years ago

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