My name is Ellie , my husband Graham has C.B.D diagnosed in June he has been ill for 2years,then in January he lost his speech and had problems with walking. After lots of blood tests scans and a lumber test we were told it could be one of three, PARKINSONS P.S.P or C.B.D. The Hospital Neurologist kindly told us only time would tell, so for 6 months I watched as he slowly deteriorated. But in June we got our label, because he had developed an ailian hand.
Now October he cannot walk unaided, it has taken his speech, can only feed with a spoon, cannot write, wash or shaved
When we saw the Neurologist in September (new one because we had to move to be near our family) He was surprised how quickly he had deteriorated.
He is hard work for me to handle 6ft 3 Iam 5ft 3 . But he is such a good tempered person and always smiling. We have good family support Iam so gratFul to have.
I have been reading all your posts they have helped me come to terms with it all and stopped me feeling Why Us.
You are all so helpful to each other I thought it was time to introduce us