Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2015

Jury Service

Help, I have just received a summons for Jury service , I am all in a panic as my husband relies on my total care , subject to frequent falls. Does anyone...

Help, I have just received a summons for Jury service , I am all in a panic as m...

•9 years ago

Baby boy

Just thought I would send you all a picture of our baby boy, he is so lovely, we love him so much, it is hard work but would not be without him. He gets so...

Just thought I would send you all a picture of our baby boy, he is so lovely, we...

Yvonneandgeorge

•9 years ago

TIRED

Does anyone have trouble staying awake. Don is very tired all of the time, seems to wake up more in the late afternoon but is in bed by 9:30. Med or PSP?

Does anyone have trouble staying awake. Don is very tired all of the time, seems...

•9 years ago

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Oxygen therapy

Has anyone heard of, or tried, oxygen therapy ? A friend has just started working at a therapy centre that offers oxygen treatments to MS sufferers, sportsmen...

Has anyone heard of, or tried, oxygen therapy ? A friend has just started workin...

•9 years ago

Acupuncture

Has anyone ever done this for pain. My husband is having pain that never stops. We have gone to every doctor for this. The neurologist is giving him Tylenol 3...

Has anyone ever done this for pain. My husband is having pain that never stops. ...

•9 years ago

Obsessive Compulsive Disorder

Do many other people's partners have this aspect of PSP ? Veronica's seems to be getting worse and worse especially if she is anxious about anything...

Do many other people's partners have this aspect of PSP ? Veronica's seems to...

•9 years ago

Dad

My father is at the stage where he is in bed majority of the time. He has carers 4 times a day, they get him up in his chair first thing for approx 4 hours...

My father is at the stage where he is in bed majority of the time. He has carer...

•9 years ago

HOLIDAYS / TRIPS AWAY

HI ALL I WROTE A POST ON MY 2 TRIPS AWAY THIS YEAR AND HAVE LOST IT AGAIN! I HAVE BEEN AWAY TWICE NOW SELF CATERING FR A WEEK WITH MY PARTNER AS HE THINKS...

HI ALL I WROTE A POST ON MY 2 TRIPS AWAY THIS YEAR AND HAVE LOST IT AGAIN! I H...

•9 years ago

Holiday

I would love to go away for a few days in September the children have asked George to go to Cyprus it would be just the five of us, but George does not want to...

I would love to go away for a few days in September the children have asked Geor...

Yvonneandgeorge

•9 years ago

Car journeys

Hi, Dad is becoming much less active now and tends to spend most days sitting in his chair. He also needs assistance getting in/out of bed and dressing etc. He...

Hi, Dad is becoming much less active now and tends to spend most days sitting in...

•9 years ago

I'm here at last!

Hi everyone, Sorry I haven't posted or replied to anyone for a long time but my internet has been down for a month and it has taken this long to sort it!...

Hi everyone, Sorry I haven't posted or replied to anyone for a long time but my ...

•9 years ago

AMANTADINE

HELLO ALL OF YOU IN THE UK --- DOES ANYONE KNOW IF AMANTADINE IS READILY AVAILABLE IN THE UK HERE IN FRANCE WE HAVE TO ORDER IT ABOUT 2/3 WEEKS BEFORE I...

HELLO ALL OF YOU IN THE UK --- DOES ANYONE KNOW IF AMANTADINE IS READILY AVAIL...

•9 years ago

Summer Approaches

I don't know about you but I always get confused at this time of the year about when summer starts . The meteorological definition is the first of June...

I don't know about you but I always get confused at this time of the year abou...

•9 years ago

Coo blimey

Do you ever get the feeling that you can't do right what ever you do. I made the decision (for safety reasons) that Brian should be hoisted at the moment...

Do you ever get the feeling that you can't do right what ever you do. I made the...

•9 years ago

I LOOKED BACK

abirke, I think it was you who asked me when symptoms started. I thought about when he started shuffling and realized it was in Sept. Went to one neurologist,...

abirke, I think it was you who asked me when symptoms started. I thought about w...

•9 years ago

peg tubing

hi all.posted once before awhile back.i am finding it very hard caring for my wife she was diagnosed in 2012 with cbd.her appetite is poor and losing weight...

hi all.posted once before awhile back.i am finding it very hard caring for my wi...

•9 years ago

Carers Week

To all you amazing, wonderful, inspirational carers - "Happy Carers week". It might seem a ridiculous gimmick in your world of constant caring but it's a...

To all you amazing, wonderful, inspirational carers - "Happy Carers week". It mi...

•9 years ago

Things are getting worse.

Although I didn't think it was possible, P has become even more confused and restless today. He has started taking off his clothes and keeps trying to get out...

Although I didn't think it was possible, P has become even more confused and res...

•9 years ago

FULL MOON!!!

Hi all, especially Yvonne! Was going to reply to your "FRUSTRATED" post, but decided to send this post so everyone can read it! Yes, I have just checked, it...

Hi all, especially Yvonne! Was going to reply to your "FRUSTRATED" post, but d...

•9 years ago

Zolpidem...new trials..

Has any one heard about this.... Press Release: Potential Treatment for Parkinson’s & Parkinson-Like Diseases with Zolpidem: SELLAS LIFE SCIENCES GROUP HOLDS...

Has any one heard about this.... Press Release: Potential Treatment for Parkins...

•9 years ago

End of my tether

Apologies in advance, I am about to have a rant and let off steam. P has had a bad fortnight (worse even than usual) constipation with no bowel movement for 9...

Apologies in advance, I am about to have a rant and let off steam. P has had a ...

•9 years ago

Frustrated

Hi everyone had a bad few days, George is doing the opposite to everything I ask him, I feel like screaming. He keeps calling me all the time, as soon as I...

Hi everyone had a bad few days, George is doing the opposite to everything I ask...

Yvonneandgeorge

•9 years ago

How long do you trial a new drug

Brian has been on baclofen for a week now not sure if it is the drug or the fact he is constipated but his ability to stand has diminished to such a state that...

Brian has been on baclofen for a week now not sure if it is the drug or the fact...

•9 years ago

Dr.'s Prognosis

We had an appointment yesterday with GP. He right away said to Jim "You are losing weight". I said that that is why we were there. We talked and he said I was...

We had an appointment yesterday with GP. He right away said to Jim "You are losi...

•9 years ago

Feeling sad

Have just been for girlie time coffee with my lovely friends and came back feeling very sad and down as we chatted about all of the things they have been...

Have just been for girlie time coffee with my lovely friends and came back feel...

•9 years ago

Mum's birthday

Mum's birthday will soon be upon us and its another of the occasions that can bring into focus what has happened in what seems such a short period of time....

Mum's birthday will soon be upon us and its another of the occasions that can br...

•9 years ago

Have I gone completely insane???????

My last week or so, have been a nightmare. Extremely low, not coping and very very tired. My sister came around and we set about how to sort me out....

My last week or so, have been a nightmare. Extremely low, not coping and very v...

•9 years ago

The District Nurse called again.

Yesterday I had coffee with a friend while C was being looked after by our regular Crossroads sitter. While I was out the district nurse called again, whey...

Yesterday I had coffee with a friend while C was being looked after by our regul...

•9 years ago

Hallucinations

Hi all, my mam has p.s.p and although she hallucinates and gets very confused whilst she has u.t.i, she also hallucinates when she doesnt.. she see's things...

Hi all, my mam has p.s.p and although she hallucinates and gets very confused wh...

•9 years ago

Today the district nurse called at my request.

Some of you know that my husband suffers from ulcerative colitis as well as PSP. It started in 1977 and he was hospitalised 4 times. However, he hadn't had...

Some of you know that my husband suffers from ulcerative colitis as well as PSP....

•9 years ago

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