My last week or so, have been a nightmare. Extremely low, not coping and very very tired.
My sister came around and we set about how to sort me out. Discussed EXACTLY what would make a difference, made a long list. Crossroads came the next day, so I was able to properly state what I needed. Mostly more respite. I now have been given money towards a gym membership, so I can get back to getting some exercise. They are now trying to resource a sitter for S. Got to pay for that! Going to see the incontinence nurse next week to try and sort S's bladder out, if only it's just, good night pads and sleeping pills. (For both of us!)
And finally, FINALLY, to see about getting a dog. Which we have done, a little black puppy arrives in two weeks!!!!
I know, I know, I have gone completely mad! On the positive side, we both desperately need something else in our lives bar PSP! Having a young pup in the house, will bring love, laughter, something to cuddle, share our problems. Give S a new reason to live, something that won't care if he can't talk, can't move around or respond when he should. A dog will just accept him and no doubt will take any excuse to get up for a cuddle, oh and clean the floor up after a meal! Bought tears to my eyes, just seeing S cuddle this little pup yesterday, when we went to view him.
OK, I know it's going to be hard at times. Who do I get to the loo first? Haven't I got enough to clean up, do I need a puppy messing all over the floor, just before S wheels through it!!! The constant tie of having a dog, I know I will curse it on numerous occasions, but I need someone to answer me back, give me a reason to get up in the morning, greet me and something to make me laugh again!
Now we have a future, something to look forward to, having somebody that relies on us to take it out, give it a good life, something apart from PSP!
Surely that's got to be good??????
I am very, very excited!!!!
Lots of love