AMANTADINE: HELLO ALL OF YOU IN THE UK... - PSP Association

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AMANTADINE

shasha profile image
8 Replies

HELLO ALL OF YOU IN THE UK --- DOES ANYONE KNOW IF AMANTADINE IS READILY AVAILABLE IN THE UK

HERE IN FRANCE WE HAVE TO ORDER IT ABOUT 2/3 WEEKS BEFORE I NEED IT AS IT HAS TO BE ORDERD FROM GERMANY -- THANK YOU FOR HELPING ME

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shasha
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8 Replies
NanBabs profile image
NanBabs

Hi Shasha,

Yes, Amantadine is available in UK, my husband has been on it for about 2 months. Sadly, no noticeable difference in his memory or behaviour though. We had it prescribed from the memory clinic.

Kathryn profile image
Kathryn

Bonjour, yes it is available in the UK on prescription. My husband took it briefly and it made a huge difference to his speech. However he got a UTI and it made all the normal symptoms much worse( agitation, confusion, disorientation) and he stopped taking it until the infection cleared. When he started again sadly the benefits did not reappear.

shasha profile image
shasha in reply to Kathryn

that is interesting as i too had to come off it due to problems getting it here and i too feel that the benefits have been diminshed

which is a great pity as of all the drugs my neuro prescribed it was the only one that had a really beneficial effect

Traseawa profile image
Traseawa in reply to Kathryn

Hi, That's interesting that your husband got a UTI on amantadine. My mom started taking it last September and after 3 weeks on it she became very confused,slurred speech and a uti that put her in the hospital for a few days. She was off the amantadine during that hospitalization and then restarted it a few days later after coming home. Three weeks after restarting the same thing happened again and the symptoms were so bad she was in a coma like state for 3 days in the hospital. She spent 12 days in the hospital then a rehab facility for 48 days. We never restarted the Amantadine. When I suggested to her doctors that it was the problem they dismissed my opinion and frankly could not come up with a diagnosis off their own as to why she went into that slump. Well I think there is definitely something to it because she has not had that happen again since she has been off it.

Katiebow profile image
Katiebow

Hi, my husband has been taking amantadine for 4 months. Can't notice any noticeable difference but hard to say, he hasn't had any side effects so just keeps taking them. See the neurologist in October so will see what he has to say. Xx

shasha profile image
shasha in reply to Katiebow

thhanks for your input

SWISS_MISS profile image
SWISS_MISS

Yes it is available.

Got some yesterday from Lloyds chemist. There were problems in supply but ok now.

shasha profile image
shasha in reply to SWISS_MISS

thanks swiss mniss i knew there were problems in the supply but it is good to hear that it is available again

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