I WROTE A POST ON MY 2 TRIPS AWAY THIS YEAR AND HAVE LOST IT AGAIN!
I HAVE BEEN AWAY TWICE NOW SELF CATERING FR A WEEK WITH MY PARTNER AS HE THINKS MY EATIGN HABITS ARE TOO BAD TO GO OUT FOR A MEAL OR OT STAY IN A HOTEL ANY MORE AND BOTH TIMES THE ACCOMM. WAS V GODOD BTU V DIFFERENT
THE FIRST IN N YORKSHIRE, NOT FAR F M WHITBY, WAS V LUXURIOUS AND WAS THU S EXPENSIVE FOR A WEEK END OF APRIL/ BEG MAY
WE ONLY SAW THE SEA ONCE CLOSE TOO AT SANDSEND NR WHITBY AND DID NOT EVEN GET INTO WHITBY THIS TIME _)WHEEELCHAIR PROBS AND TOOO MUCH ELSE OT DO)
THE WEATHER WAS ,MIXIED BUT DID NOT STOP US DOING ANYTHING WE WNATED TO DO AND WE WERE OUT FM ABOUT 10 3 0 UNTIL 6PM
THE FLOORS WERE NATURAL STONE SO WERE- V HARD TO FALL ON BTU I COPED!
WSE VIS.ITED CHURCHES SOEM NEW TO US SOEM FAMILIAR ONES TOO - ALWAYS OPEN TO THE PUBLIC WHICH IS A GREA THTIGN ABTOU THE AREA (INC TEH .YORKSHRIE WOLDS)
WE SAW MY 3 COUSINS FOR LUNCH ON 2 OCC`SIONS `ALWAYS A DELIGHT TO SEE THEM AND NO PROBS APART FM MIY BOWELS WHIHC WERE PLAYING UP ON THE LAST OCCASION` `AND VWELL HANDLED BY MY YOUNGEST COUSIN IS SHE READS THIS
BJUT ENOUGH OF MY PROBLEMS -= ,MY TYPIGN IS STILL POOR AS MY LEFT HADN SI STILL NTO WORKING AT ALL WELL
(STILL GOT THESE PINS AND NEEDLES AND NUMBNESS IN IT)
NBUT A SIA SAID ENOUGN TO THE PSP PROBS
THE GREENS OF THE HEDGEROWS ANDS FIELD S`AND TREES WERE V YOUGN AND SPRING HAD CERTAINLY ARRIVED
IC NANORT WA`X LYRICAL BOUT THE WILD FLOWER S IN THE HEDGEROSW LIEK GEORGE[A CAN NBUT TJERE WER E LOTS FO DANDELIONS AND BUTTERCUPS OUT AND that IS MY LOT FOR NOw
PHASE 2 WILL BE THE TRIP TO DUMFRIES `ND GALLOWAY B4 ORJU NEXT VISIT= TO YORKSNHIRE A`GA`IN AT BEG OF JULY
LOL JILL
HUgS `and XX XX 2 YOU `ALL
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jillannf6
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That sounds like a wonderful vacation. I'm so glad you shared it with us, Jill. Those were long days out and about; your stamina is quite impressive, too. You go, girl!
I commend you Jill for your typing skills. My husband has left the keyboard long ago. Unless there are pix he can 'see' he does not he attempt.
About your arm. It may be something greater than chiropractic, but that sure is where I would go first. I take it that you sit alot. this put alot of strain on parts of your body that might need adjusting. especially tingling....sounds like a pinched nerve and/or not enough blood flow. A pt can help you with excercises after the Chiropractor moves the arm neck and upper lumbar around...yikes! but if theyre good they know what theyre doing!
I don't want to ruin your holiday , but I am interested in your symptoms....they seem so difft than B's . He is cognizant but cannot FIND the words to answer back...you seem quit able to use language....and again the typing my husband cannot see the keys nor does he have the coordination to push the right key....actually I am not sure about that.....and walking, period!.....he just want to sit there! I ask him what time he would like to go, not if he would like to go...I know that question would lead to a "NO"...and if he really does not want to go I respect that.
At any rate you can see the diffc. between you and B. Maybe when you get back on holiday you can tell me what you do to keep doing!
Have a great holiday watch out for slippery stones!
I can't wait to hear from you. you are online so to speak. Do you feel a disconnect from others? Or do you feel PSP has not taken things such as social skills from you....Please forgive my boldness but I am very interested in your journey. As you have already read, B and many others with PSP slip easily into apathy.....you seem to be repelling this quite nicely and communicating with others.....Do you feel a connect with others? besides this site, how are you maintaining your social connection....do you feel a disconnection since being diagnosed? I delve into my husband's situation as something to be studied and use that info to modify and adjust his environment....So again I don't want to be cold but I am curious....
Jill I I JUST FOUND your answer ...forgive me that I did not scroll down further ....If it is not on the screen...it's not on the computer...but you did write back thank you. I will read it now anxious to hear/read your answers....Thank you again
Jill so glad you had a good break - must have been nice to meet up with your family - and don't worry about the typing - you are doing brilliantly and we can understand everything you write so it is not a problem .
Streak i suppose AND THE FACT THAT I AM A YORKSHIRE GIRL THRO AND THRO AND HAVE THE TRUE YORKSHIRE GRIT IN ME (??)
I DONT KNOW AND THANKS FRO YORU CONCERN AND INTEREST ABOT MY LFFT HAND AND RIGHT Shoulder = THE PHYSIO I SAW WAS V. GOOD and manipulated my neck/shoulder a little so it was much stiffer yesterday than usual and he gave me 2 excs to do =1for my neck and 1 for my shoulder
i may have to go back to the GPS IF THERE IS NO IMPROVEMENT IN THE NEX T COUPLE FO WEEKS = MY PARTNER TOOK ME FOR THE PHYSIO appt but did not realise i was paying for it and that it was b4 the end of my choIr rehearsal so i had to leave early Fm that AND TODAH ISA BIG DAY I GET MY SUJMME RCLOTHES DOWN FROJM THE V HIGH CUPBOARDS IN THE BEDROOM AND GO TO SEE A DIFFERENT NEURO - MY USUAL ONE IS OFF SICK SO I SHALL HAVE OT START ALL OVE RAGAIN I CANNTO WRTIE ANHYTHIGN SO SHALL HAVE OT TYPE IT ALL!!
tenacity is what gets you through....Yes! Yes Bruce is not a spit fire (i am that) but he considers the way he should go and goes. even if that means plowing his walker into the dining room chairs hahaha. But some of this cannot be controlled by him...do you feel like you have control over social skills...apathy is not part of you? Is it truly where you are from? or is it you, Jill? ...do you have apathy lingering and fight it off...or is apathy in social realms something that just does not affect you. B does not have some symptoms ( or whatever ) that others have.....
when were you diagnosed?...Again please forgive me for the bombardment of questions.....
I AM NOT APATHETIC BUT AM THANKFUL THAT I HAVE THR SLWO SORT OF PSP AND THAT I HAVE BEATEN BREAST CANCER TOO (2 AND HALF YRS AGO
\DXD 2010 DEC AND THERE MAY BE A CHANGE IN DXS AFTER SEEEIGN A DIFFERENT NEURO ON FRIDYAY last - BUT I shall get the result of the blood tests doen on em in approx 6/7 weeks time
sorry i cant eholp on the apathy thing - i DO take an anti=depresssnat mOmENT have done for the past 40 y son and offf and there si the anxiety too which i take 2 pills a day for: this all helps me cope with ~"living"
but i tend to winge on 2 my partner and not on this site so ,much no idea hwy but thatis the case
Well they did prescribe antidepressants for B....did not do him much good.....yet. His behavior (except for apathy) has not been much affected....I was just wondering what kept you so spry...I must commend you again and thankyou for writing back. You have fought and won and are still winning ! I hope the new neuro works out for you no sense fighting that as well...uggg
Have a lovely ....evening...Its 6:48 am here....wish I were sleeping
Sounds like you had an action packed holiday in Yorkshire, my fave place around that area is Robin Hood Bay, not sure if that is possible in a wheelchair or unbalanced.we have just returned from Dumfries and Galloway, so beautiful. Checkout Rockcliffe near Dalbeattie, it is a beautiful spot and there is a small parking area looking onto the beach ( even a ramp onto the beach) Also a loo there too. You could easily spend a day looking out to sea. There is a tea room and ice cream van but that is about all. it is heaven on earth in my eyes. Enjoy your stay and hope you get the hand sorted. Kate xxx
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Hello from Australia...Kim
PSP has taken my mum away from me.
Hospice coming up trumps again!!!
