mother in law.

[stitchandknit]

Hi everyone, I just need to talk to people who are going through what we are going through with my mother in law. She is now unable to orally eat. Anything that goes into her mouth causes wretching, and chocking. She is now peg fed for all of her meals. We as a family find it hard not knowing how she is feeling or even what she is thinking, we go on mass to see her at the care home, who are brilliant, and talk around her knowing that she is listening, and sometimes, there is the occasional noise, which makes us all smile.Her neck is now going into spasm, and is pulling backwards to one side. She is in a wheel chair and now I think we are going to have to get her a new one with a head rest, to give her more comfort. Sorry for the rant. stitch and knit.

[hmfsli]

Hi StitchandKnit,

I am sorry to hear about your Mum. It is hard to watch our loved ones deteriorate with this horrible disease. I am sure your Mum appreciates your visits to the care home and it must be a comfort to you that the care staff take good care of her. I know Mum loves seeing her family but if we all visit at the same time it can be a bit overwhelming for her. I wonder if this is true for your Mum too?

Don't ever apologise for coming on this site and having a rant. We have all done it at one time or another and probably will again!

All the best

h

[wifemo]

Hello, Stitch and Knit -

I am so sorry to hear how your Mum is - I'm sure being part of the family conversation, even if she can't contribute, will be a comfort to her as no doubt you include her where you can.

Wheelchair with headrest - Tony's OT managed to get him a sitting chair with headrest, which reclined so that he could be at the right angle to feed and even go to sleep, it was so comfortable. The back was padded to fit his body (rather like a rally car seat.)

Although a PSPA member (through our son) I've only recently joined this part of the site - reading the various tales of woe I realise how lucky we were with support although we did have some awful battles along the way. We lost Tony in December and I agree with h's comments above - feel free to rant away.

By the way - why "Stitch and Knit"? I find knitting is still good therapy for me now I'm on my own.

Take care - there is light at the end of the tunnel.

wifemo

[stitchandknit in reply to wifemo]

Thanks for the information about a chair, I wlll show this to my mother in laws ot, I agree about knitting. xx

Stitch and Knit

[wifemo in reply to stitchandknit]

Hello there -

Just a warning that the chair was expensive (at least £2,000 I believe) - but we were lucky enough to be accepted for CHC (Continuing Health Care) who picked up the cost - thank goodness for the NHS.

If you are in the UK and not eligible for CHC - keep trying. If you need any more help, let me know.

Mo