Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for August 2021

Uodate

Apparently this below due to fractured vertebrae and Iv used sick day rules so on 20 mg from yesterday. How many days please. Relieved it’s not worse. Pain...

Apparently this below due to fractured vertebrae and Iv used sick day rules so o...

Uglow

•3 years ago

6 Replies

Vascular Inflammation seen in Covid, Long haulers and post vaccine long haulers

Thinking that there could be a crossover here of what they have found in the Vascular Inflammation seen in Covid, Long haulers and post vaccine long haulers -...

Thinking that there could be a crossover here of what they have found in the Vas...

Slosh

•3 years ago

4 Replies

Doctors!!

I've just noticed on a post by Kendrew that PMR was mentioned as a "Life Changing disease". When I was first diagnosed, last year, I said to the doctor, "This...

I've just noticed on a post by Kendrew that PMR was mentioned as a "Life Changin...

ChrisinNam

•3 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Just be aware

Had dental work last week - thorough cleaning under my gums. Felt a mite uncomfortable once the anaesthetic wore off but put that down to the multitude of...

Had dental work last week - thorough cleaning under my gums. Felt a mite uncomfo...

Flivoless

•3 years ago

4 Replies

Does this seem right?

Last month's visit to dentist ended in a flare as I wasn't aware of need to increase pred.I was taking 6mgs and slowly went to 8.05 mgs since I was aching and...

Last month's visit to dentist ended in a flare as I wasn't aware of need to incr...

ancientprune

•3 years ago

7 Replies

Covid antibodies

I posted a while ago that I was on a trial. I had an antibody test in December, negative, no covid antibodies. I had both jabs the, after 5 weeks, another...

I posted a while ago that I was on a trial. I had an antibody test in December, ...

Nagswoman

•3 years ago

12 Replies

My tank is empty!

I'm tired of being tired, feeling useless, feeling a burden on my other half. I feel like finding a place where I can just do nothing and not feel bad about...

I'm tired of being tired, feeling useless, feeling a burden on my other half. I ...

GCAVictim

•3 years ago

68 Replies

tapering from 4.5 to 4 - some new symptoms

Hallo wonderful people: I am tapering from 4.5 to 4 on alternate days and have been doing this for just over a week. (I started on 15gm prednisilone in July...

Hallo wonderful people: I am tapering from 4.5 to 4 on alternate days and have b...

humlies

•3 years ago

8 Replies

Hock I the Noo!

January 1st, I downloaded an app for a walk from lands end to John o groats. Each day I have gone out and I am pleased to say that on Friday morning I arrived...

January 1st, I downloaded an app for a walk from lands end to John o groats. Eac...

Devonspinner

•3 years ago

11 Replies

Why does everyone who can need to get their jabs?

I thought I'd share this very thought provoking article in case it may be useful to anyone facing an "I'm alright Jack" attitude from friends or family about...

I thought I'd share this very thought provoking article in case it may be useful...

PMRpro

Ambassador•3 years ago

78 Replies

Kennel Cough Vaccination of Dogs

I think I found a report on Kennel Cough and steroids here somewhere. Can anyone point me in the right direction, please?

I think I found a report on Kennel Cough and steroids here somewhere. Can anyon...

Pinkcuffs

•3 years ago

5 Replies

Secondary

Is Pmr secondary to another illness! Or is it The Illness. Not sure

Uglow

•3 years ago

1 Reply

Booster vaccine

Curious if anyone has gotten a booster vaccine ( 3rd shot ) yet and how they reacted ? I scheduled mine for tomorrow here in the U.S. but I'm wondering if I...

Curious if anyone has gotten a booster vaccine ( 3rd shot ) yet and how they rea...

rocketman42

•3 years ago

28 Replies

I have developed a ‘waddle’

I have only been on Pred for 3.5 months and currently reducing down from 10 to 9. I have developed a slight moon face/ puffy ness on occasions but have also...

I have only been on Pred for 3.5 months and currently reducing down from 10 to 9...

Rymer

•3 years ago

32 Replies

Flare up?

I was diagnosed with PMR in April 2020 and started on 40mgs of Prednisolone. I have been at 10mgs for the last month. I resigned from my job two months ago...

I was diagnosed with PMR in April 2020 and started on 40mgs of Prednisolone. I h...

SanG55

•3 years ago

12 Replies

Bad cold not getting better

A week ago I saw a friend who was recovering from a cold. You’ve guessed it! I caught the first cold I’ve had for several years. Not only that it’s worse than...

A week ago I saw a friend who was recovering from a cold. You’ve guessed it! I c...

DogAgilityObsessed

•3 years ago

31 Replies

Covid & tapering

I am battling covid and the worst symptom is the unrelenting fever. It’s day 6 and every day my temperature spikes to 102.5 Tylenol or Aleve do little to...

I am battling covid and the worst symptom is the unrelenting fever. It’s day 6 a...

Zareda

•3 years ago

25 Replies

PMR pain

I’m in agony!! Also I’ve got headache Finished work at 2130 straight to bed 🥲

Hidden

•3 years ago

9 Replies

Proof that Pacing works Perfectly!

Well, I'm a week into my Cornish break and after an unexpected and potentially 'health-damaging' start to the holiday I made sure I rested & took it easy, and...

Well, I'm a week into my Cornish break and after an unexpected and potentially '...

Kendrew

•3 years ago

108 Replies

How fast does Prednisolone work?

I've been on Prednisolone 20mg for a few weeks but haven't really noticed much improvement. Does this mean it's not going to work or am I expecting too much...

I've been on Prednisolone 20mg for a few weeks but haven't really noticed much i...

SFFo

•3 years ago

20 Replies

Silicone bracelet

I bought a red silicone steroid dependent bracelet which arrived yesterday. And then I learned that I'm allergic to silicone! Anyone who wants it, pleas PM...

I bought a red silicone steroid dependent bracelet which arrived yesterday. And...

ChrisinNam

•3 years ago

8 Replies

Sensible GP, Rheumatologist not so much…

Telephone consultation with Rheumatologist yesterday. He’s not happy that I’m on 14mg of prednisone and wants me off the steroids. Been off work now for 6...

Telephone consultation with Rheumatologist yesterday. He’s not happy that I’m o...

Spittal9

•3 years ago

77 Replies

Dentist and shopping

Good morning all! I had a dentist appointment yesterday to have an ancient filling replaced. Up until around 2007 I'd had a dentist phobia such that I hadn't...

Good morning all! I had a dentist appointment yesterday to have an ancient fill...

ChrisinNam

•3 years ago

44 Replies

Trouble tapering from 5mg

Hi. I have tried twice to reduce down slowly. I dropped from 5mg daily to 2.5mg once a week with 5mg the remaining days. Wasn’t too much worse after about 3...

Hi. I have tried twice to reduce down slowly. I dropped from 5mg daily to 2.5mg...

Sandyowl

•3 years ago

23 Replies

PMR newbie

Newly diagnosed in June tho I’d had pain for a while. All I’ve been told is I have PMR GP started me on 30mg I’m now down to 15mg but still have aches rather...

Newly diagnosed in June tho I’d had pain for a while. All I’ve been told is I ha...

Hidden

•3 years ago

15 Replies

Another Question! Is it PMR or GCA Symptom's!

Back again with another question, After my GCA/Shingles scare last month I'm still feeling pain in my left jaw by my ear. Went to dentist before the GCA...

Back again with another question, After my GCA/Shingles scare last month I'm st...

SARose

•3 years ago

16 Replies

Can you meet safely during the pandemic?

This questionnaire arrived in my inbox a few minutes ago and it takes about ten minutes to complete. I feel there is one flaw, as it only asks for age of...

This questionnaire arrived in my inbox a few minutes ago and it takes about ten ...

HeronNS

•3 years ago

12 Replies

Searching within the PMR Hub.

How does one do a search just within the PMR Hub/ community? When you go the top and search health unlocked it gives a search for all the different health...

How does one do a search just within the PMR Hub/ community? When you go the to...

nickmits

•3 years ago

1 Reply

Chiropractor / osteopath

Is it advisable to attend chiropractor / Oestopath recently diagnosed vasculitis - Takaysus . On pred 17.5 currently . Dexta is perfect . Have found so helpful...

Is it advisable to attend chiropractor / Oestopath recently diagnosed vasculitis...

Ballywilliam

•3 years ago

6 Replies

dizziness and poor balance

Hello I havnt posted for a while. But frequently read all your posts. I have had PMR for 3 years and GCA for 1 year. I am taking 4.5 and 4 mg prednisolone...

Hello I havnt posted for a while. But frequently read all your posts. I have...

Creamtea

•3 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Uodate

Vascular Inflammation seen in Covid, Long haulers and post vaccine long haulers

Doctors!!

Just be aware

Does this seem right?

Covid antibodies

My tank is empty!

tapering from 4.5 to 4 - some new symptoms

Hock I the Noo!

Why does everyone who can need to get their jabs?

Kennel Cough Vaccination of Dogs

Secondary

Booster vaccine

I have developed a ‘waddle’

Flare up?

Bad cold not getting better

Covid & tapering

PMR pain

Proof that Pacing works Perfectly!

How fast does Prednisolone work?

Silicone bracelet

Sensible GP, Rheumatologist not so much…

Dentist and shopping

Trouble tapering from 5mg

PMR newbie

Another Question! Is it PMR or GCA Symptom's!

Can you meet safely during the pandemic?

Searching within the PMR Hub.

Chiropractor / osteopath

dizziness and poor balance

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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