Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,756 members • 39,021 posts

All posts for August 2021

What dose Folic Acid are you taking with 20mg Methotrexate?

People that are on Methotrexate and Folic Acid - can I pick your brains please? I started on Methx in Dec 2020 with 2 x 5mg Folic Acid tablets (Meth on a...

People that are on Methotrexate and Folic Acid - can I pick your brains please? ...

Prof99

•3 years ago

51 Replies

Hydroxichloriquin

Hydroxichloriquin prescribed after nearly 18 months off Pred, any advice appreciated

Hydroxichloriquin prescribed after nearly 18 months off Pred, any advice appreci...

Stiffspot

•3 years ago

3 Replies

Any suggestions

Hi all I was diagnosed with GCA in April 2021 and started on prednisolone 60mg, since then I have been tapering and now on 17.5mg. I’ve only had 1 face to face...

Hi all I was diagnosed with GCA in April 2021 and started on prednisolone 60mg, ...

Avon14

•3 years ago

17 Replies

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Can I beat PMR without farmaceiticals?

Hi all, help! I was diagnosed with PMR three months ago and my GP in Spain is pressing me to start medication. Whereas I am not a 100% anti- Farma conspiracy...

Hi all, help! I was diagnosed with PMR three months ago and my GP in Spain is pr...

Laurenceseidler

•3 years ago

46 Replies

Covid connection

Firstly accept my apologies if this has been asked but does anyone else think there PMR may have kicked off following a Covid infection. I had it in December...

Firstly accept my apologies if this has been asked but does anyone else think th...

Darcy200

•3 years ago

4 Replies

Rib pain

Does anyone have rib pain ?i have reduced down to x2.5 prednisone and have been ok but lately have rib pain feels like bruising

Does anyone have rib pain ?i have reduced down to x2.5 prednisone and have bee...

Crochetty

•3 years ago

11 Replies

Checking in

3 yrs on pred and now down to 2mg. Going v slow .5mg at a time over many weeks. I feel so much better, the pred effects are almost gone, ( night sweats,...

3 yrs on pred and now down to 2mg. Going v slow .5mg at a time over many weeks. ...

Alazarin

•3 years ago

10 Replies

PMR and Covid-19 vaccine

Three days after having my first Astra-Zeneca jab I developed extreme muscle aches in my thighs. These aches rapidly became acute and have spread to my upper...

Three days after having my first Astra-Zeneca jab I developed extreme muscle ach...

Laurenceseidler

•3 years ago

52 Replies

Have I done the right thing?

Started pred 15 in April. Got down to 10mg 2weeks ago. Not felt great since then if honest but carried on. One night last week was sooooo tired I went to bed...

Started pred 15 in April. Got down to 10mg 2weeks ago. Not felt great since then...

MiloCollie

•3 years ago

5 Replies

Covid vaccine

Anyone know how efficient the covid vaccines are when taking prednisolone? I was prescribed it for suspected GCA 13 days after my second jab. Worried!

Anyone know how efficient the covid vaccines are when taking prednisolone? I was...

Crommie

•3 years ago

2 Replies

Left to suffer!!!

I started my journey in January 21 after a winter covid 19 infection, did this kick it off?? I wonder? I could not believe the pain I was in,often reduced to...

I started my journey in January 21 after a winter covid 19 infection, did this k...

Nursey30

•3 years ago

12 Replies

Still pushing for GCA diagnosis…

Morning. So many of you were wonderful when I first posted on here 3 days ago. I revisited A & E on Sunday who made an emergency referral to Rheumatology as,...

Morning. So many of you were wonderful when I first posted on here 3 days ago. I...

AgathaC

•3 years ago

10 Replies

Cough linked to Aledronic Acid?

I have been taking 70 mg Aledronic since September. Recently I have developed a slight cough . I also take Omeprazole for heartburn due to a hiatus hernia. Has...

I have been taking 70 mg Aledronic since September. Recently I have developed a ...

Golf123

•3 years ago

5 Replies

Alendronate- side effect (diarrhea)

I started alendronate 3 weeks ago and 3 days. In week 3 I am experiencing diarrhea, sometimes uncontrollable unless I take Imodium. I’ve taken this 4 years...

I started alendronate 3 weeks ago and 3 days. In week 3 I am experiencing diar...

Kjdsg

•3 years ago

9 Replies

Feeling a little desperate

Hi, I'm relatively new to this but just wanted to check in to ask if many of you have just not received any real help in regards to a proper GCA diagnosis? I...

Hi, I'm relatively new to this but just wanted to check in to ask if many of you...

Feathercraft

•3 years ago

30 Replies

Dosages after flares

Hello all. I recently had a little flare when I dropped from 5 to 4.5 mgs of pred. My rheumy told me to bump back up to 10, then reduce to 7.5 after 3 days,...

Hello all. I recently had a little flare when I dropped from 5 to 4.5 mgs of pr...

winfong

•3 years ago

5 Replies

Feeling desperate

3 weeks ago I was taking 6 mg of pred.Didn't know to increase pred before my dental procedure and it caused a flare.Inched my way by.05 mg backup to 7mg but...

3 weeks ago I was taking 6 mg of pred.Didn't know to increase pred before my de...

ancientprune

•3 years ago

9 Replies

Lots of energy

Hi all, for the last 3 wks I have taper to 12mg and yesterday went to 11mg, I usually take it between 7-8am but from about 6PM I seem to have so much energy...

Hi all, for the last 3 wks I have taper to 12mg and yesterday went to 11mg, I us...

Hidden

•3 years ago

1 Reply

Prednisolone with turmeric

I'm on prednisolone down to 2mg .my question is can I take turmeric capsules with prednisolone and if so how much turmeric can I take a day. Is anyone taking...

I'm on prednisolone down to 2mg .my question is can I take turmeric capsules wit...

Denbo51

•3 years ago

32 Replies

Dosage

I have been prescribed 70g of AA, is this a strong dose, I thought I saw somebody on a lot less dose, Does it mean I have osteoporosis quite bad, I’m going to...

I have been prescribed 70g of AA, is this a strong dose, I thought I saw somebod...

Diver6

•3 years ago

4 Replies

10 to 7.5 pred, what can l expect?

GCA. I dropped from 10 to 7.5mg pred. starting yesterday. Not long ago my legs and arms seemed to have had weights attached as they both seemed difficult to...

GCA. I dropped from 10 to 7.5mg pred. starting yesterday. Not long ago my legs a...

Elbowpiece

•3 years ago

22 Replies

Pred/adcal

Advice please - is it necessary to take Adcal when my bone profile shows good calcium levels? When I next speak to the Doc (in a months time!) Im going to ask...

Advice please - is it necessary to take Adcal when my bone profile shows good ca...

Hidden

•3 years ago

6 Replies

Lymphedema evaluation yesterday and PT coming up

What is going on in my body now is a first for my. I feel like I'm wearing a metal girdle around my back and swing two poles of concrete when I move my legs....

What is going on in my body now is a first for my. I feel like I'm wearing a me...

Grammy80

•3 years ago

15 Replies

My sure fire system is not so sure!

Over the weekend (2/3 days) I felt so unwell, in pain (bilateral, shoulders) neck etc. head felt like it was in a vice and my energy levels plummeted. I...

Over the weekend (2/3 days) I felt so unwell, in pain (bilateral, shoulders) nec...

IdasMum

•3 years ago

6 Replies

PMR and Covid

Good morning, been a while since I posted anything, but wanted to ask those with more understanding and experience than myself (only being one year in to this...

Good morning, been a while since I posted anything, but wanted to ask those with...

Littlejan22

•3 years ago

8 Replies

Worried about Alendronic Acid and pain

Hi I started AA last Thursday when my doctor rang me with the results of my Bone scan and told me I had osteoporosis, he didn’t give me any results or tell me...

Hi I started AA last Thursday when my doctor rang me with the results of my Bon...

Diver6

•3 years ago

11 Replies

Did not expect that.

18 months in now. Down to 2mgs and more than ready to slow taper to 1.5. My PMR pain is fair in my fingers and minimal in wrists, shoulders and thighs. I’ve...

18 months in now. Down to 2mgs and more than ready to slow taper to 1.5. My PMR ...

Underpars

•3 years ago

9 Replies

Early morning hand grip issues

I haven't been diagnosed get but aswell as painful hips and shoulders when I wake up my hands feel swollen and I can't grip very well.Do other people have this...

I haven't been diagnosed get but aswell as painful hips and shoulders when I wak...

Rudbeckia007

•3 years ago

22 Replies

Hot tub help ?

I am interested if anyone has had relief w use of hot tub. I have been using heated pool for exercise 1 to 2 x week and find it very nice. However not sure of...

I am interested if anyone has had relief w use of hot tub. I have been using he...

kiwijenn

•3 years ago

10 Replies

Hello I’m new to your group, I’m Pen, please read my profile I would appreciate any wise words.

Are many others with GCA PMR who’s eyes have been tremendously affected ? I’m registered as SSI (Blind) have little sight now.? Do the headaches head pain...

Are many others with GCA PMR who’s eyes have been tremendously affected ? I’m r...

Pennyroyaltea

•3 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

What dose Folic Acid are you taking with 20mg Methotrexate?

Hydroxichloriquin

Any suggestions

Can I beat PMR without farmaceiticals?

Covid connection

Rib pain

Checking in

PMR and Covid-19 vaccine

Have I done the right thing?

Covid vaccine

Left to suffer!!!

Still pushing for GCA diagnosis…

Cough linked to Aledronic Acid?

Alendronate- side effect (diarrhea)

Feeling a little desperate

Dosages after flares

Feeling desperate

Lots of energy

Prednisolone with turmeric

Dosage

10 to 7.5 pred, what can l expect?

Pred/adcal

Lymphedema evaluation yesterday and PT coming up

My sure fire system is not so sure!

PMR and Covid

Worried about Alendronic Acid and pain

Did not expect that.

Early morning hand grip issues

Hot tub help ?

Hello I’m new to your group, I’m Pen, please read my profile I would appreciate any wise words.

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