Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for August 2021

Amitriptyline

Hi all, just got back from gp and been prescribed amitriptyline 10mg, does anyone take this? If so yr thoughts good or bad.also been prescribed prochloperazine...

Hi all, just got back from gp and been prescribed amitriptyline 10mg, does anyon...

Hidden

•3 years ago

21 Replies

Quick question re Nitrofurantoin

It seems I have an asymptomatic pee infection. Must be 20 years or more since I had one of those... Is Nitrofurantoin ok to take with Pred and TCZ (which i...

It seems I have an asymptomatic pee infection. Must be 20 years or more since I...

Sophiestree

•3 years ago

21 Replies

Update

Just had a shouting match (well, raised voices) with my doctor. Because of what happened when I went to the dentist, and when I went to the audiologist...

Just had a shouting match (well, raised voices) with my doctor. Because of wha...

ChrisinNam

•3 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Update on dexa scan

Hi me again . Just had a few of the results re my dexa scan ( osteoporosis nurse coming Friday to discuss in more detail) suddenly everyone wants to see me...

Hi me again . Just had a few of the results re my dexa scan ( osteoporosis nurs...

Looby60

•3 years ago

18 Replies

Flare?

So, I mentioned earlier that I hade overdoen tthe exercis eabout 4 weeks ago and then also contracted some virus - was man down for a few days and afetr that...

So, I mentioned earlier that I hade overdoen tthe exercis eabout 4 weeks ago and...

Slosh

•3 years ago

11 Replies

Pred-induced Osteoporosis - Zoledronic acid??

Hi Everyone I was asked to report back after I'd seen my consultant this week, re the ankle fracture I incurred without a fall or trip - you rightly deduced...

Hi Everyone I was asked to report back after I'd seen my consultant this week, r...

Frewen1

•3 years ago

32 Replies

Advice

Hi all, I woke up this morning with sharp pains around temple area, sore to touch, also head around that area feel sore on that area feels like it burning my...

Hi all, I woke up this morning with sharp pains around temple area, sore to touc...

Hidden

•3 years ago

3 Replies

Getting it right the first time - NHS Report.

https://www.gettingitrightfirsttime.co.uk/wp-content/uploads/2021/08/Rheumatology-Jul21h-NEW.pdf I haven't read it yet - 140 pages - but I thought some of you...

https://www.gettingitrightfirsttime.co.uk/wp-content/uploads/2021/08/Rheumatolog...

PMRpro

Ambassador•3 years ago

23 Replies

PMR Question

I asked my doctor for a test to see if my adrenals are kicking back in and she told me that there is little point as it's not a reliable test. Has anyone else...

I asked my doctor for a test to see if my adrenals are kicking back in and she t...

remission

•3 years ago

7 Replies

Update on "it was a pred increase I needed" from 13 days ago

I went up to 15mg from 10mg for 6 days and felt so much better. After 6 days I dropped down to 11mg which is where I last felt well (advice from you great folk...

I went up to 15mg from 10mg for 6 days and felt so much better. After 6 days I d...

MiloCollie

•3 years ago

3 Replies

Adrenal restart

Hello, as for most of us the last 12 months has been a bit up and down for me. Last year I had been on 1.5mg of pred and thinking I was close to coming off. I...

Hello, as for most of us the last 12 months has been a bit up and down for me. L...

hurryupharry

•3 years ago

3 Replies

Adrenal glands

Hi,just wondering when you know when they are working again.am on 4mg.at mo.

Flosy

•3 years ago

16 Replies

Dropping down from 2mg to. 1 1/2mg prednisolone.

I have been following very slow taper going down 1/2 mg each time.and now at 2mg. Is it ok to cut 1mg tablets with pill splitter as they don't have a score...

I have been following very slow taper going down 1/2 mg each time.and now at 2mg...

Healthworrier

•3 years ago

12 Replies

Bursitis after PMR relapse

After a recent PMR relapse, and not for the first time, I adjusted the Pred dose upwards for a week and everything returned to normal. However, unlike...

After a recent PMR relapse, and not for the first time, I adjusted the Pred dose...

dmart7

•3 years ago

4 Replies

Link to helping a flair

Hi can someone please send the link explaining what to do when you flair. I know the process I just want to see why its ok to go up 5 mg and then drop back...

Hi can someone please send the link explaining what to do when you flair. I know...

rescuedogs

•3 years ago

6 Replies

Dental Health , Metronidazole and Compromised Immune System

Hello Everyone hope you are all doing as well as possible. Here in Western Australia we have been most fortunate for some time now with no community...

Hello Everyone hope you are all doing as well as possible. Here in Western Austr...

Rimmy

•3 years ago

10 Replies

Those with GCA. Would you take the booster if you had a flare with the vaccine.

I had the Pfizer vaccine in February and March. At that time, I was on 4 mg of prednisone. One day before my second dose, I had a flare of GCA and eventually...

I had the Pfizer vaccine in February and March. At that time, I was on 4 mg of p...

USAGCA

•3 years ago

12 Replies

PMR, what constitutes a flare, fatigue, bursitis, + covid as an extra!

I'm new here- made a couple of comments and have followed conversations, gleaning invaluable info about taking things slowly - both with tapering and...

I'm new here- made a couple of comments and have followed conversations, gleani...

orangebee

•3 years ago

10 Replies

Adrenals or Heart?!!!

I haven’t posted for a while, but I read nearly all the posts and respond when I think I have something useful to say. I was diagnosed with PMR in April 2018...

I haven’t posted for a while, but I read nearly all the posts and respond when I...

Omanain

•3 years ago

14 Replies

DEXA Scan Results

I have just received my DEXA Scan results from last Thursday's scan (via text & a download file from my GP). Here is what it said: Total spinal T-score 2.1,...

I have just received my DEXA Scan results from last Thursday's scan (via text & ...

AyJayBass

•3 years ago

8 Replies

Air filters for immunocompromised

With the fourth wave, we were thinking glumly of lockdown this winter. Then I read that UK schools are putting in HEPA and ultra violet C filters. We...

With the fourth wave, we were thinking glumly of lockdown this winter. Then I r...

Jane424

•3 years ago

10 Replies

Posts about covid vaccination

A reminder to our members to keep posts relevant to PMR and GCA and where a post touches on Covid-19 and vaccinations and specifically other people's decisions...

A reminder to our members to keep posts relevant to PMR and GCA and where a post...

Fran_Benson

Partner•3 years ago

GCA??

I just experienced a very short, VERY sharp pain on the side of my head. I hope this is nothing?

I just experienced a very short, VERY sharp pain on the side of my head. I hope...

ChrisinNam

•3 years ago

9 Replies

Update on my leg/hip pain & walking difficulties

Thanks to everyone who responded to my post last week. Just to let you know that I went to my lovely Physiotherapist yesterday and she says it is nerve pain...

Thanks to everyone who responded to my post last week. Just to let you know tha...

HappyDiamonds

•3 years ago

9 Replies

Leflunomide - what side effects please?

Is anyone able to give me some advice about Leflunomide please which I have been offered today to assist with lowering Pred currently 12.5/10 on alternate days...

Is anyone able to give me some advice about Leflunomide please which I have been...

HappyDiamonds

•3 years ago

16 Replies

Covid

Safe from COVID. I am down to 10mg for 8 weeks from 40mg early April. When I started my go said when I got down to 10mg I shouldn’t worry about COVID. He said...

Safe from COVID. I am down to 10mg for 8 weeks from 40mg early April. When I sta...

Crommie

•3 years ago

16 Replies

Is this 1984?

In addition to 11 mg of steroids I am also now having to take 1 1/2 gms of Metformin and 4 insulin injections per day. I am only socialising outside with...

In addition to 11 mg of steroids I am also now having to take 1 1/2 gms of Metfo...

butterflyfarm

•3 years ago

10 Replies

Seriously ill

Sorry all keep glancing at the posts, I'm not ignoring you all and will try and add soon. Hip replacement went septic so has had have it removed and redone...

Sorry all keep glancing at the posts, I'm not ignoring you all and will try and ...

Hiibilly

•3 years ago

29 Replies

Dreading weekly appointment tomorrow

Hi all, got my weekly appointment tomorrow with a different gp as my usual one is on holiday for 2 wks, I dread it when I get a different gp cause I seem to...

Hi all, got my weekly appointment tomorrow with a different gp as my usual one i...

Hidden

•3 years ago

8 Replies

Tapering

How gently should I taper? Last Fall I was started on 15 mg and tapered 5mg a week and was a mess. My GP decided prednisone didn't suit me. Because I am so...

How gently should I taper? Last Fall I was started on 15 mg and tapered 5mg a ...

Jane424

•3 years ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Amitriptyline

Quick question re Nitrofurantoin

Update

Update on dexa scan

Flare?

Pred-induced Osteoporosis - Zoledronic acid??

Advice

Getting it right the first time - NHS Report.

PMR Question

Update on "it was a pred increase I needed" from 13 days ago

Adrenal restart

Adrenal glands

Dropping down from 2mg to. 1 1/2mg prednisolone.

Bursitis after PMR relapse

Link to helping a flair

Dental Health , Metronidazole and Compromised Immune System

Those with GCA. Would you take the booster if you had a flare with the vaccine.

PMR, what constitutes a flare, fatigue, bursitis, + covid as an extra!

Adrenals or Heart?!!!

DEXA Scan Results

Air filters for immunocompromised

Posts about covid vaccination

GCA??

Update on my leg/hip pain & walking difficulties

Leflunomide - what side effects please?

Covid

Is this 1984?

Seriously ill

Dreading weekly appointment tomorrow

Tapering

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive