Flare up?

[SanG55]

I was diagnosed with PMR in April 2020 and started on 40mgs of Prednisolone. I have been at 10mgs for the last month. I resigned from my job two months ago (too much pressure/stress from my line manager, even though working from home). I thought I'd be able to find something else during my three months notice period, but haven't as yet, so slightly concerned about financial implications. My daughter who lives with me has just recovered from Covid - I was able to be away while she was infectious (good for me and bad as a mum!). Over the past three days I have been feeling progressively worse each morning, with many of the pains I had before diagnosis, Just wondering if I should up my Pred dose and if so, by how much? My GP pretty much leaves me to manage my symptoms. Many, many thanks in anticipation.

[DorsetLady PMRGCAuk volunteer]

This post includes general info on dealing with a flare... which I would guess in your case may be a combination of too low a dose plus stress (understandably) -

healthunlocked.com/pmrgcauk...

[SanG55 in reply to DorsetLady]

Thank you so much 🙂

[DorsetLady PMRGCAuk volunteer in reply to SanG55]

..and plenty of self TLC if you can mange it...hope you soon feel better.

[SanG55 in reply to DorsetLady]

Thank you. people around me have got used to me being 'ok' and will find it difficult to understand this. I have tried to say that it could happen at any time and they seem to think positive thoughts will ward of any flare and while I believe in this to a certain degree, I don't feel I could have stopped this happening with thoughts alone. Thanks again for your advice and support, I really appreciate it x

[DorsetLady PMRGCAuk volunteer in reply to SanG55]

I know what you mean about being ‘ok’…I got told off by son last week when I said I was okay (it was a difficult day..for all of us) …he said ‘mum, you always say that, when I know you’re not really’. But actually I was…..

[Hidden in reply to DorsetLady]

I recalled this post this am when my daughter asked if I was okay. I said yes, but something made her doubt. On questioning it was because I had included her name in my response. 😳. Oh dear. I have to be so careful or the slightest variation, inflection or nuance makes them suspicious. 😄. They watch me like a hawk. It’s comforting , yet… wish they didn’t worry so much. We are so lucky to have their love.

[SanG55 in reply to Hidden]

So true Ipadmom. I count my blessings daily 🙂

[DorsetLady PMRGCAuk volunteer in reply to Hidden]

Yes we are —- the problem started when his dad was ill and my son lived over 200 miles away and crazily busy , so when he asked how he was I said okay. But his interpretation of okay was not the same as mine and hubby’s. I meant as good as could be considering his illness, son thought I meant being perfectly alright ( as a 35 year would).

I have since learnt to say what I mean!

[Hidden in reply to DorsetLady]

Often interpretation can be so unexpectedly different. Especially with our children. It still startles me. One of my sons , it takes forever to draw him out. I have learned to interpret the word dance we have to go through before he gets to the gist. Yes, okay to me also means for now and given the circumstances. Take care. 🤗

[DorsetLady PMRGCAuk volunteer in reply to Hidden]

..and you 😊. My son is a very caring, gregarious, outgoing person, but he’s also analytical and as he admits himself - a control freak - so he’s like a dog with a bone if he want to know something! Mix of me and his dad - all his good side from me obviously!

[Hidden in reply to DorsetLady]

😄. Oh, obviously!

[Pippah45]

It's really difficult to say exactly how OK or not we are isn't it. I remember someone matchmaking me with a local Bachelor and she said "whatever you do - don't ask him how he is..... because he will tell you!" He did too at great length! Until he was actually ill with flu I think it was and I read between the lines and drove over and found him more or less delirious. Completely de-hydrated (but he had a glass of water by the bed) That's no good says me you have got to drink it and then some!

I know it's different with families and we should be more truthful! Good luck.