Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for August 2021

FDA authorizes additional dose of Coved vaccine for the immunocompromised

Big news story in the US last night. According to the link in this article the immunocompromised include those on high doses of corticosteroids. When...

Big news story in the US last night. According to the link in this article ...

Mstiles

•3 years ago

11 Replies

Covid myths debunked by an expert

https://www.theguardian.com/world/2021/aug/13/common-myths-about-covid-debunked Since I have already read a couple of mythis/lies about Covid today I thought...

https://www.theguardian.com/world/2021/aug/13/common-myths-about-covid-debunked ...

PMRpro

Ambassador•3 years ago

65 Replies

What To Ask my GP Today

Good morning all I'm second week in on being newly diagnosed on 20mg prednisolone .I do feel better about 50% GP today what should I be asking. I have a very...

Good morning all I'm second week in on being newly diagnosed on 20mg prednisolon...

Darcy200

•3 years ago

2 Replies

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I need some advice please

Advice please. I have recently been offered retirement due to medical grounds, GCA. There are 3 tiers of retirement offered based on medical records and...

Advice please. I have recently been offered retirement due to medical grounds, G...

Whatawonderfullife

•3 years ago

4 Replies

I’ve passed the test!

Had a call from the nurse in endocrinology yesterday afternoon. I had a short synacthen test on Monday. She said that I had passed the test and my blood result...

Had a call from the nurse in endocrinology yesterday afternoon. I had a short sy...

York54

•3 years ago

30 Replies

Dilemma

Good morning everyone, I haven’t posted for a while and I hope you are all well. I have a dilemma! I started Pred at the end of March 2021 15 mg for 1 month,....

Good morning everyone, I haven’t posted for a while and I hope you are all well...

Pangolin43

•3 years ago

10 Replies

Dexa scan

Can I ask anyone in the group please . When you have your Dexa Scan do they expect you to be able bodied and able to get on the table , lay down and get off...

Can I ask anyone in the group please . When you have your Dexa Scan do they exp...

Looby60

•3 years ago

37 Replies

I would really appreciate some help. Due to uptick in my pain while tapering down to 4 mgs. From 4.5 mgs I listened to your prior help and

Went up to 9 for 7 days with some relief and then up to 9.5 for the last 3 days. finally no pain. Do I drop down or stay for a few days. What do I drop to....

Went up to 9 for 7 days with some relief and then up to 9.5 for the last 3 days....

rescuedogs

•3 years ago

7 Replies

Update on my GCA/Large vessel vasculitis journey: off pred and back to normal (with TCZ)

I have been diagnosed with GCA/LVV in February of this year. My main symptoms were fever and fatigue and I had CRP values of up to 80 and an ESR of 100. I am...

I have been diagnosed with GCA/LVV in February of this year. My main symptoms we...

DeepThought2

•3 years ago

45 Replies

Hip and steroids

Hi everyone long time I have not been on, sorry. I had a complete hip replacement 4 weeks ago ( regretting it 😭😭😭 ) The consultant upped my preds same day...

Hi everyone long time I have not been on, sorry. I had a complete hip replacemen...

Margaret1951

•3 years ago

38 Replies

Advice please

My daughter in law wants me to have the grandchildren over night on Sunday. Yesterday they went on the train to London. Went to the theatre and museums etc....

My daughter in law wants me to have the grandchildren over night on Sunday. Yest...

Joanbill13

•3 years ago

76 Replies

Do Corticosteroids Make You Immunosuppressed ?

I thought this article was very interesting and might help some on the forum....

kulina

•3 years ago

3 Replies

Latest report …

Hello, just reporting the latest which is a bit disappointing. I am down to .5mgs pred, have been on that for a couple of weeks. My Rheumatologist has...

Hello, just reporting the latest which is a bit disappointing. I am down to .5m...

LemonZest11

•3 years ago

6 Replies

Feelings of ‘ panic’ at 3.5 mgs Prednisilone

Hi I am on 3.5 mgs of Pred after. 8yrs of my long journey with PMR and steroids. On the whole I’m doing well. Still stiffness in legs, hips and back but think...

Hi I am on 3.5 mgs of Pred after. 8yrs of my long journey with PMR and steroids....

wendyanne49

•3 years ago

14 Replies

Firstly why do my legs feel like jelly, (now on 11mg) and secondly what is the threshold for referral to a rheumatologist?

I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg haven’t...

I was first diagnosed with PMR at the start of lockdown and the euphoria trigger...

AnniesRyder5

•3 years ago

24 Replies

Not sure if having a flare

Hi all - need advice: Diagnosed with PMR Feb 2017. I have Mast Cell Activation Syndrome on top of the PMR. Seems that I probably have had it for a long time -...

Hi all - need advice: Diagnosed with PMR Feb 2017. I have Mast Cell Activation S...

Slosh

•3 years ago

7 Replies

Possible reduction after next blood test 2 weeks time.

Today is the first day since diagnosis in June that I awoke and didn't think about state of muscle/body. Didn't think about going up or down stairs so wasn't...

Today is the first day since diagnosis in June that I awoke and didn't think abo...

cycli

•3 years ago

6 Replies

Bursitis

I am wondering if the burning sensation on my back near to where my bra fastens could be bursitis. Any thoughts please

I am wondering if the burning sensation on my back near to where my bra fastens ...

Koalajane

•3 years ago

2 Replies

Alendronic acid query

Hi, I was diagnosed with GCA & PMR in November 2018. I was put on 60mg prednisolone along with AA, lanzoprazole,& Adcal . I am now down to 2.5mg prednisolone...

Hi, I was diagnosed with GCA & PMR in November 2018. I was put on 60mg prednisol...

Lyndaki

•3 years ago

18 Replies

MRI scan

Me again . Had 2nd MRI scan end of July ( first one was in beginning of March) Results of this last one show 20 percent further height loss in 2 of previous...

Me again . Had 2nd MRI scan end of July ( first one was in beginning of March) ...

Looby60

•3 years ago

2 Replies

We're not getting out of her alive

Feeling that I have come out of the Astrazenica hurricane which destroyed my life for at least 4 weeks each time I decided to look put some things in order. My...

Feeling that I have come out of the Astrazenica hurricane which destroyed my lif...

Singr

•3 years ago

22 Replies

Eye test sorted

Just to let you all know, had a very thorough eye test today and am very happy that no GCA detected...she thought my xrays showed very healthy eyes for a woman...

Just to let you all know, had a very thorough eye test today and am very happy t...

Poll8

•3 years ago

6 Replies

Neck pain

Hi all, Ibeen on 11mg since monday tapering down 1mg every 3 wks and feel good more bit of stiffness but no pain except for my neck which doesn't seem to be...

Hi all, Ibeen on 11mg since monday tapering down 1mg every 3 wks and feel good m...

Hidden

•3 years ago

4 Replies

Oxy pro

My Gp has given oxy pro that’s slow realise oxycodone for my back. Unfortunately it hadn’t helped yet. I have Sweats like menopause but I’m over that long time...

My Gp has given oxy pro that’s slow realise oxycodone for my back. Unfortunately...

Uglow

•3 years ago

16 Replies

Not sure what’s going on

Iv increased pred to 20 mg but feel no better. Have random pains back still no better. Can’t work out what’s wrong with back! Crostochronditis ? I can’t stay...

Iv increased pred to 20 mg but feel no better. Have random pains back still no b...

Uglow

•3 years ago

3 Replies

Blood tests to be rationed

From the Telegraph today: DOCTORS have been ordered to stop non-essential blood tests as they face a global shortage of key equipment. NHS England guidance...

From the Telegraph today: DOCTORS have been ordered to stop non-essential blood...

piglette

•3 years ago

25 Replies

Update

Hello All It has been some time since I posted but just felt like giving an update. My last posts were about suffering from TMJ. I do believe after six months...

Hello All It has been some time since I posted but just felt like giving an upda...

Robinsnest72

•3 years ago

4 Replies

Am finding it very difficult to find my way around this forum!!! Can anyone help? I start to write something and then can’t find it again!!

Negotiating forum

Bedwell

•3 years ago

16 Replies

Steroid card

Hello all, This might seem a silly question, but I’m in the US and it seems doctors or pharmacies here have never heard of a blue steroid card, something...

Hello all, This might seem a silly question, but I’m in the US and it seems...

Mstiles

•3 years ago

12 Replies

Alendronic acid or not?

Fifteen months ago when I started Pred, my GP insisted I took Alendronic acid to avoid osteoporosis. I asked for a Dexa scan first, which he refused, so I did...

Fifteen months ago when I started Pred, my GP insisted I took Alendronic acid to...

Francesbarbara

•3 years ago

41 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

FDA authorizes additional dose of Coved vaccine for the immunocompromised

Covid myths debunked by an expert

What To Ask my GP Today

I need some advice please

I’ve passed the test!

Dilemma

Dexa scan

I would really appreciate some help. Due to uptick in my pain while tapering down to 4 mgs. From 4.5 mgs I listened to your prior help and

Update on my GCA/Large vessel vasculitis journey: off pred and back to normal (with TCZ)

Hip and steroids

Advice please

Do Corticosteroids Make You Immunosuppressed ?

Latest report …

Feelings of ‘ panic’ at 3.5 mgs Prednisilone

Firstly why do my legs feel like jelly, (now on 11mg) and secondly what is the threshold for referral to a rheumatologist?

Not sure if having a flare

Possible reduction after next blood test 2 weeks time.

Bursitis

Alendronic acid query

MRI scan

We're not getting out of her alive

Eye test sorted

Neck pain

Oxy pro

Not sure what’s going on

Blood tests to be rationed

Update

Am finding it very difficult to find my way around this forum!!! Can anyone help? I start to write something and then can’t find it again!!

Steroid card

Alendronic acid or not?

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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