Rheumatologist yesterday

[missrat]

I've written quite a bit in the questions section so won't repeat it here. I have atypical PMR and osteoarthritis in my spine. The clinic at our new hospital was running over an hour late! All the test results were in - a few odd results but nothing really significant - apart from the fact that I must NOT take added vitamins and calcium!

She prescribed three new medications - azathioprine (a steroid-sparing medication, in the hope that I can decrease my prednisolone to 5mg or less over a period), Arcoxia for pain relief (probably will only be needed every three days) and lidocaine plasters for back pain. The radio-frequency ablation has settled my sciatica, but I am having more thoracic back pain at present - which will not be improved by cage-cleaning, which is very necessary!

I now have the results of my MRI - done in 2010, for which I had never been told the results! I'm putting all the results for everything on my computer now.

I'm glad it's cooler today. I'm in a procrastinating mood - not unusual - and feeling very tired.

[pennyw Administrator PMRGCAuk team member]

Sorry to hear you are having such a bad time Missrat. I can't add anything to help but I am looking forward to seeing you again on 13 August in Tonbridge at the Northkent Support Group meeting. We already have a good number of people booked in and a speaker who is talking about how she helps people with ME, another auto-immune disease. Not sure if it will help any of us but even the smallest suggestion that works would be good.

[pennyw Administrator PMRGCAuk team member]

Sorry to hear you are having such a bad time Missrat. I can't add anything to help but I am looking forward to seeing you again on 13 August in Tonbridge at the Northkent Support Group meeting. We already have a good number of people booked in and a speaker who is talking about how she helps people with ME, another auto-immune disease. Not sure if it will help any of us but even the smallest suggestion that works would be good.

[missrat]

That sounds very good. Looking forward to seeing you.

Ann