Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for June 2017

Advice for fatty liver

Hi everyone. I've been diagnosed with PBC for about 2 yrs, on Ursovsnd my blood tests show it's stabilised. I've had an ultrasound scan due to pain around the...

Hi everyone. I've been diagnosed with PBC for about 2 yrs, on Ursovsnd my blood ...

Caroline-12

•7 years ago

3 Replies

A little scared

Has anybody had the Transjugular biopsy?

Hidden

•7 years ago

4 Replies

My MD has never heard of PBC!

I find it very strange my MD has never heard of PBC.My local Gastroenterologist is my only source of info.After my Upper Endoscopy he gave me my diagnosis last...

I find it very strange my MD has never heard of PBC.My local Gastroenterologist ...

PBCTracy

•7 years ago

6 Replies

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Diet

So my MD said watch your fat salt and sugar intake..... how many gm of fat are we restricted to? He did say no more than 1500 of salt daily and as little sugar...

So my MD said watch your fat salt and sugar intake..... how many gm of fat are w...

Pamela4475

•7 years ago

16 Replies

PBC - Fibrosis stage 2

I was diagnosed 1 year ago, asymtematic with the exception of elevated enzymes. I am symptom free. I have fibrosis stage 2 as per a liver biopsy. I take...

I was diagnosed 1 year ago, asymtematic with the exception of elevated enzymes. ...

Ellewoods33

•7 years ago

1 Reply

Anybody use Essential Oils?

I was wondering if anybody uses them for pain?I have PBC plus Endometriosis.I have no symptoms of PBC but Endo I do.I was diagnosed with PBC last month and...

I was wondering if anybody uses them for pain?I have PBC plus Endometriosis.I ha...

PBCTracy

•7 years ago

1 Reply

Ursodeoxycholic acid

Can anyone tell me please can I drink cranberry juice whilst taking urso ?

Hidden

•7 years ago

18 Replies

Just a quick question

Just a quick question !! When they say take urso at night , is that at bed time ?? I thought you had to take with food so when they say take at night do they...

Just a quick question !! When they say take urso at night , is that at bed time...

Lmur

•7 years ago

33 Replies

Dryness and itching

Question to ladies. Anyone notices vaginal dryness and itching since diagnosed with PBC? I suppose it can be completely unrelated. Just wonder, if anybody has...

Question to ladies. Anyone notices vaginal dryness and itching since diagnosed w...

iagra

•7 years ago

15 Replies

Lymph nodes

I had my usual ultrasound scan last Monday, and usually the radiographer says ,can't see anything to worry about but this time she asked if I was to get bloods...

I had my usual ultrasound scan last Monday, and usually the radiographer says ,c...

flora

•7 years ago

13 Replies

Day 2 of Urso

After being diagnosed just over a week ago I am on day 3 of urso in the morning. So far I seem to be o.k but keep waiting for side effects to get me. I seem...

After being diagnosed just over a week ago I am on day 3 of urso in the morning....

Lisamarie33

•7 years ago

26 Replies

Itching

I am fairly newly diagnosed with PBC and I have a question for you all. I pretty much thought I didn't have symptoms. Not really enough to send me to the...

I am fairly newly diagnosed with PBC and I have a question for you all. I pretty...

4pjx__

•7 years ago

11 Replies

Advil or Tylenol

Hi all. I hope you are having a care-free relaxing weekend. :) My GI doc told me to take acetaminophen for pain. Not ibuprofen. I try to only take it when...

Hi all. I hope you are having a care-free relaxing weekend. :) My GI doc told ...

NormaH951

•7 years ago

6 Replies

Fingers Crossed

I started the Ocaliva yesterday. After a bit of a battle with the insurance it's coveted. Fingers crossed this works to lower my enzymes:-)

I started the Ocaliva yesterday. After a bit of a battle with the insurance it's...

Shulsey

•7 years ago

14 Replies

Period 10 Days Late(and trying for a baby)

Hi, Hope someone has some advice. I was diagnosed with OBC about 2 months ago. Been taking Urso for about a month and a half. I've been trying to get pregnant...

Hi, Hope someone has some advice. I was diagnosed with OBC about 2 months ago. ...

mrsreddave

•7 years ago

2 Replies

Itchy scalp!!!

This last month I have now have an itchy scalp, drives me nuts, as anybody else have the same symptoms.

This last month I have now have an itchy scalp, drives me nuts, as anybody else...

Sandie1

•7 years ago

13 Replies

elevated CA 19-9

Does anyone here have elevated CA 19-9? This is a cancer marker for Bile duct and/or Pancreas.I have slightly elevated Ca 19-9, slightly elevated AMA M2,...

Does anyone here have elevated CA 19-9? This is a cancer marker for Bile duct an...

JaneIng

•7 years ago

4 Replies

Help for liver disease

I found this site has some useful natural foods that may be worth a try Naturalmedicine.team Hope it helps

I found this site has some useful natural foods that may be worth a try Natural...

Biddyb

•7 years ago

1 Reply

Feeling encouraged!

After 3 weeks on Ursodiol my ALP has gone from 600 to 225. I didn't expect to see them come down that fast. I know it needs to come down further but I feel...

After 3 weeks on Ursodiol my ALP has gone from 600 to 225. I didn't expect to s...

4pjx__

•7 years ago

26 Replies

Side effects of Ocaliva

Ever since I am taking Ocaliva I feel stiffness in my knees. My doc did some tests and one of them is Sed rate. My sed rate is 37 which is higher for my age....

Ever since I am taking Ocaliva I feel stiffness in my knees. My doc did some tes...

Mg40

•7 years ago

1 Reply

Question

I know they have change the name of PBC. My question is since I was just diagnosed 2 weeks ago cofirmed by liver biopsy that come back saying primary biliary...

I know they have change the name of PBC. My question is since I was just diagnos...

Bakerc

•7 years ago

11 Replies

Speechless

I have just been to my dentist for 1st check up since diagnosis 4 weeks ago, updated him with me now having PBC, told him what it was & he changed...

I have just been to my dentist for 1st check up since diagnosis 4 weeks ago, upd...

Quilter1

•7 years ago

24 Replies

Resolved Itching?

Has anyone that had pretty bad itching take medication that completely resolved your itching? If so, what was it?

Has anyone that had pretty bad itching take medication that completely resolved ...

marty102

•7 years ago

6 Replies

Itching with normal bilirubin blood levels?

Hi everyone, I am 31 and have recently been diagnosed with PBC. I went to the doctor after months of persistent itching - mainly on my hands and feet but often...

Hi everyone, I am 31 and have recently been diagnosed with PBC. I went to the do...

SarahFred

•7 years ago

7 Replies

Urso and tricor (fenofibrates?)

Is anyone on urso and tricor and how are you tolerating these meds? I want to thank everybody in advance.... if it was not for this site I don't know what I...

Is anyone on urso and tricor and how are you tolerating these meds? I want to th...

Pamela4475

•7 years ago

22 Replies

just an update

my old dr sent over my chart I reviewed it. I was tested for the antibodies in 2015, My current dr said we can repeat the test if I want to or we can wait. I...

my old dr sent over my chart I reviewed it. I was tested for the antibodies in 2...

mtk0925

•7 years ago

2 Replies

Well got the referral, third time lucky!

I saw my GP today, explained the hepatologist has retired. he was as upset as me and now is penning a referral to Addenbrookes and asking for fast track>...

I saw my GP today, explained the hepatologist has retired. he was as upset as me...

Jo_Br

•7 years ago

3 Replies

So much going on

Hello everyone, I don't even know where to start or what questions I have. I have been diagnosed with PBC about two yrs ago. My "liver" Dr was very lax in my...

Hello everyone, I don't even know where to start or what questions I have. I hav...

mek4wlk

•7 years ago

11 Replies

Probably a silly question !!!

I have been diagnosed 4 weeks now with pbc and still worried with the not knowing and waiting for a fibroscan but thank you for all the replies to other...

I have been diagnosed 4 weeks now with pbc and still worried with the not knowin...

Lmur

•7 years ago

7 Replies

Stabbing pain, left of center, under ribs. PBC?

When I breathe deeply, raise my arms or am lying on my left hand side I am getting very sharp stabbing pains. It makes it hard to breathe sometimes. The pain...

When I breathe deeply, raise my arms or am lying on my left hand side I am getti...

Terralynn

•7 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2017

Advice for fatty liver

A little scared

My MD has never heard of PBC!

Diet

PBC - Fibrosis stage 2

Anybody use Essential Oils?

Ursodeoxycholic acid

Just a quick question

Dryness and itching

Lymph nodes

Day 2 of Urso

Itching

Advil or Tylenol

Fingers Crossed

Period 10 Days Late(and trying for a baby)

Itchy scalp!!!

elevated CA 19-9

Help for liver disease

Feeling encouraged!

Side effects of Ocaliva

Question

Speechless

Resolved Itching?

Itching with normal bilirubin blood levels?

Urso and tricor (fenofibrates?)

just an update

Well got the referral, third time lucky!

So much going on

Probably a silly question !!!

Stabbing pain, left of center, under ribs. PBC?

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