Dryness and itching: Question to ladies... - PBC Foundation

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Dryness and itching

iagra profile image
15 Replies

Question to ladies. Anyone notices vaginal dryness and itching since diagnosed with PBC? I suppose it can be completely unrelated. Just wonder, if anybody has this symptom and if it is possibly connected to PBC.

Thanks.

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iagra
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15 Replies
PBCRobert profile image
PBCRobertPartner

Firstly, I am not a lady but I have heard this question many times.

Many people with PBC often have Sicca Syndrome (sometimes called Sjogren's Syndrome, but Sjogren's is just one possible reason for Sicca Syndrome). Anyway, Sicca Syndrome is associated with dry eyes, dry mouth, and (in women) vaginal dryness. Itch isn't a symptom as such, but could be caused by the dryness.

Whilst all of these symptoms are comfortable, they tend not to be indicative of anything more serious. That said, in your case it may or may not be down to Sicca Syndrome.

This is just general information and does not, in any way, replace the need to have a chat with your clinician.

iagra profile image
iagra in reply to PBCRobert

Thank you for this information, Robert! I'll look into this.

Diane62 profile image
Diane62

I suffer from external vaginal itching but have been diagnosed with Sjogrens Syndrome recently. Diane

Mg40 profile image
Mg40 in reply to Diane62

I have same problem. How did you find out about SS. Blood test or biopsy? Was it your gynecologist who asked for these tests?

iagra profile image
iagra in reply to Mg40

I also would like to know how was SS diagnosed? Thanks!

iagra profile image
iagra

Sorry, you have the same problem as me! How was Sjogrens was diagnosed? Blood test? I've searched and found that ANA marker may be used.

Wilmahair profile image
Wilmahair

Yes so much so I have now been diagnosed with Lichen Slerosis.

iagra profile image
iagra in reply to Wilmahair

Thanks! Hope you get better!

Jlruggie profile image
Jlruggie in reply to Wilmahair

Lichen, what, I have that too. Lichen schlerosis caused vaginal adhesions skin closing my clitoris for god's sakes. Thank god for an awesome boyfriend and world expert gynochologist, I arrested it. It's like a skin disorder maybe like psoriasis I'm imagining. Skin doctors prescribe clobosetal for psoriasis too and that's what my gyno prescribed for lichen. I'm taking 1/4 estrogen applicator 2x per week too for dryness. Workin great.

195748 profile image
195748 in reply to Wilmahair

Hi Wilmahair. I don't know what lichen slerosis is but I have oral lichen planus which was picked up by my dentist and required a biopsy of the inside of my cheek. Apparently it is linked to autoimmune disease x

Wilmahair profile image
Wilmahair in reply to 195748

Well it's another auto immune disease that causes terrible itching tearing and scaring of the outer vaginal opening and clitorus. My Dr prescribed Diprosone OV Ointment and also the oveston cream to be inserted 2xweekly. It is diagnosed by a biopsy that can be quite painful in such a tender area. Not much fun. Most of the time I can keep it under control and also enjoy a healthy sex life. Just have to be more careful esp with dryness as the skin is very fragile but my first symptoms were dryness and itching. Used to drive me potty. Now I have a jug in my bathroom and every time I use my bowels to keep everything healthy down there I use about a dessert spoon of bicarb of soda to a litre of warm water and wash whole area. We have very hot long summers here so it was a fantastic way to keep my skin healthy down there. Hope this is of help to any other sufferers out there. Oh and ditch the soap down there. Just another agrivater you don't need.

Wocket profile image
Wocket

Yes I had it really bad but doctors have put me on hormone replacement patches and vagifem. I also find eperderm cream not ointment has helped no end so much so that I feel normal most of the time

iagra profile image
iagra in reply to Wocket

Thanks for this info! Best to you!

Jlruggie profile image
Jlruggie

yes I itched something awful, used to dab listerine on and sometimes leave it there to stop itching and heal self and boyfriend inflicted scratches and abrasions. It worked but didn't get to the etiology of the disorder. Go to a gynocologist and make sure you don't have adhesions or lichen schlerosis. I do. I insert a 1/4 applicator of estrogen cream for itching and vaginal dryness and clobosetol for lichen schlerosis, Gyno prescribed. No itching or dryness, sex is awesome and estrogen is supposed to enhance completion. Do your annual mamos and weekly thorough manual palpations for breast tumors. I'm 60 this year, lovin life, planning to live to 110.

Jlruggie

iagra profile image
iagra in reply to Jlruggie

Thanks for the info and positive message! All the best to you!!

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