I am 31 and have recently been diagnosed with PBC. I went to the doctor after months of persistent itching - mainly on my hands and feet but often elsewhere too - and blood tests revealed the disease. My GP and hepatologist do not believe my itching is related though, as my bilirubin blood tests came back normal. My question is - has anyone else experienced itching with normal bilirubin levels? Apparently this isn't possible but it seems odd to me that this wouldn't be a symptom...seeing as you know, itching is one of the main symptoms of PBC!