Fingers Crossed: I started the Ocaliva... - PBC Foundation

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Fingers Crossed

Shulsey profile image
14 Replies

I started the Ocaliva yesterday. After a bit of a battle with the insurance it's coveted. Fingers crossed this works to lower my enzymes:-)

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Shulsey profile image
Shulsey
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14 Replies
4pjx__ profile image
4pjx__

It'll Work! Just imagine that medicine going after those nasty little antibodies and making them Stop! A lot of people seem to be helped by this medicine and you'll be one of them. Please keep us posted on your Progress!

You are so pretty. I hope and pray that this medication works for you

Shulsey profile image
Shulsey in reply to

Aww thank you, I'll take the compliments as often as I can lol. Im aging so I don't feel very pretty these days. Plus this dreaded disease wears on us.

in reply toShulsey

This disease is attacking beautiful people that live clean lives

Pamela4475 profile image
Pamela4475 in reply to

That's a fact

Ktltel profile image
Ktltel

I sure hope and pray it does. Keep us posted. ❤

Stella

Shulsey profile image
Shulsey in reply toKtltel

I sure will❣️

Pamela4475 profile image
Pamela4475

I am just coming in to the conversation... better than urso or can't take urso?

Shulsey profile image
Shulsey in reply toPamela4475

The Urso worked for me in the beginning, then it stopped working for some reason. I still take it but the Ocaliva acts as a booster on top of the Urso.

Pamela4475 profile image
Pamela4475 in reply toShulsey

Was wondering where I go if urso does not work well.... now I know... thanks 😊

Shulsey profile image
Shulsey in reply toPamela4475

You're very welcome😁

LindaVillanova profile image
LindaVillanova

Hi there, I am waiting for insurance to add it to their list as well then will be joining you. Look forward to hearing how you're getting on. Curious about side effects. My doc said to try and tough thru the itch if it happens as it usually goes away in 4 months. Good luck!!

Shulsey profile image
Shulsey in reply toLindaVillanova

Good luck to you too!! My heptologist said that the only real side effect that has been a issue for others he has placed on it is more itching. If it gets my numbers down & slows the progression, I think I'll get some sand paper to keep by my bed lol. I already itch, mostly at night.

LindaVillanova profile image
LindaVillanova

Wow! Well here's to better numbers!

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