I saw my GP today, explained the hepatologist has retired. he was as upset as me and now is penning a referral to Addenbrookes and asking for fast track>
massive thanks to Robert at the PBC for giving me the right phrases to use. I had my GP laughing as I said there is no way a gastro man who does not know what PBC is doing a biopsy, it's like asking a tiler to do the electrics!
He agreed that I need a liver unit, I am just hoping its not too long a wait.
Anybody know how long if they have been referred to a liver unit (UK)?
My ALP is now 642 down again in two weeks from the 1,084 originally
Bilirubin down to 8 two weeks ago it was 22.
That is all I know, so whatever I have (still seems to be PBC) Urso seems to be doing its thang!!
I know that I am weeks/months away from getting a diagnosis and the itch is very bothersome as is the fatigue, feel a bit aggrieved that I lost the specialist to a surprise retirement, I will have to get respite for Granny for a lot longer as it's an hour away but at least there will be lots of liver specialists there.