Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for June 2017

What to do

I have read on here how important it is to eat a healy diet. I dont see my gastro dr till June 28 so im not sure what foods i need to stay away from. Im a very...

I have read on here how important it is to eat a healy diet. I dont see my gastr...

Bakerc

•7 years ago

15 Replies

Finally seen Hepatologist

Well I finally seen the Hepatologist and I really liked him. He actually sat down and explained things and answered any questions I had without seeming to be...

Well I finally seen the Hepatologist and I really liked him. He actually sat dow...

Lisa15

•7 years ago

11 Replies

Nexium and urso

Does anyone here take meds for Fred and pbc? When I look these two up it doesn't seem like I should take together

Does anyone here take meds for Fred and pbc? When I look these two up it doesn'...

Pamela4475

•7 years ago

34 Replies

Want to take advantage of all our features? Just log in!

Hi...help needed re travel insurance please re cirhossis

Hi I think this will only be relevant to those who have stage 4 cirhossis now but any info very appreciated. I can get no insurance until 1 year after my...

Hi I think this will only be relevant to those who have stage 4 cirhossis now ...

bobbycat

•7 years ago

7 Replies

Hepatic encephalopathy

Hi, I've just been diagnosed with ist stage hepatic encephalopathy(he) for short, has anybody on here got this, as well as p b c . Any information would be...

Hi, I've just been diagnosed with ist stage hepatic encephalopathy(he) for short...

Boysanboys59

•7 years ago

23 Replies

High liver enzymes not AMA test yet but shouldn't my labs get worse not better

My alt is 68 AST 51 and ALP 116 last year they were normal for my physical examine... in January when tested on a new add med they were ALT 84 AST 65 and ALP...

My alt is 68 AST 51 and ALP 116 last year they were normal for my physical exami...

mtk0925

•7 years ago

21 Replies

Gabapentine

Has anyone tried this to get rid of the horrific itch. I have tried questran,rifampin and naltrexone. My liver specialist has now prescribed this as the itch...

Has anyone tried this to get rid of the horrific itch. I have tried questran,rif...

Melwoods

•7 years ago

18 Replies

One of those days

I'm having one of those days... Sharp pain in my right side...mid section warming up, irritable...no rhyme or reason to this...

I'm having one of those days... Sharp pain in my right side...mid section warmi...

tonia66

•7 years ago

3 Replies

For those who had liver biopsy......

did you receive sedation?

mike932

•7 years ago

32 Replies

How much does urso cost per month for people without insurance?

Just wondering in case I ever lose insurance

mike932

•7 years ago

12 Replies

Hot flushes!

Hello PBC ladies, I have been worried about my hot flushes not going away...I just turned 50, and I've had them for 5 years now, right after early menopause at...

Hello PBC ladies, I have been worried about my hot flushes not going away...I ju...

Liverette

•7 years ago

5 Replies

Recipes for Questran if you are struggling!

Just saw somebody mention cooking with it, alarm bells rang as I would put money on heating it removing its efficacy. However these are sauces and soups and...

Just saw somebody mention cooking with it, alarm bells rang as I would put money...

Jo_Br

•7 years ago

5 Replies

Has anyone tried Robuvit?

Has anyone tried Robuvit for fatigue? It appears to be a wonder supplement fir cfs and liver detox.

Has anyone tried Robuvit for fatigue? It appears to be a wonder supplement fir c...

Hidden

•7 years ago

12 Replies

Creatinine Level

Hi All have had PBC for over 10 years and now i am showing high Creatinine levels, has anybody else noticed their levels going up, just wondered if it could...

Hi All have had PBC for over 10 years and now i am showing high Creatinine level...

Kevviv

•7 years ago

4 Replies

New to this forum. AMA test was positive.

Hi everyone. My name is Mike. I am 47 years old. Three months I got my first AMA test and I tested 38.7 which is positive. I have no symptoms and all my...

Hi everyone. My name is Mike. I am 47 years old. Three months I got my first ...

mike932

•7 years ago

16 Replies

Feeling guilty

Positive AMAs since around 2003; diagnosed PBC end 2015; aged 63. URSO has brought LFTs back into line. Lucky to have few symptoms apart from fatigue....

Positive AMAs since around 2003; diagnosed PBC end 2015; aged 63. URSO has broug...

swinstan

•7 years ago

26 Replies

I am starting to lose hope!

Hi all, my latest update and I am more scared and confused than ever. I if you remember finally ditched the gastro guy, got a fab hepatologist who did a fibro,...

Hi all, my latest update and I am more scared and confused than ever. I if you r...

Jo_Br

•7 years ago

15 Replies

Ursodiol and constipation

I have been on ursodiol for a little over 2 weeks and I'm suffering from constipation. Has anyone else had this? I'm wondering if it's the ursodiol or...

I have been on ursodiol for a little over 2 weeks and I'm suffering from consti...

Vera70

•7 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2017

What to do

Finally seen Hepatologist

Nexium and urso

Hi...help needed re travel insurance please re cirhossis

Hepatic encephalopathy

High liver enzymes not AMA test yet but shouldn't my labs get worse not better

Gabapentine

One of those days

For those who had liver biopsy......

How much does urso cost per month for people without insurance?

Hot flushes!

Recipes for Questran if you are struggling!

Has anyone tried Robuvit?

Creatinine Level

New to this forum. AMA test was positive.

Feeling guilty

I am starting to lose hope!

Ursodiol and constipation

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive