Hello everyone, I don't even know where to start or what questions I have. I have been diagnosed with PBC about two yrs ago. My "liver" Dr was very lax in my diagnosis. He seemed to act like it wasn't a big deal. That he even said that it wouldn't be something to worry about until I'm like 75 and then laughed, I'm 47. How do they come to diagnose PBC ? The only tests he ever did were liver function tests which were always high. He did put me on URSO which I took for a couple months but became extremely bloated. I did just recently start taking URSO again to see how it goes. Since being diagnosed I have heart issues last year they put in a pacemaker/defibrillator. I have PVC's &PAC's with tachycardia. Partial paralysed diaphragm. I'm going to see a rheumatologist the end of this month. My whole body gets stiff and sore mobing hurts and my biggest issue is EXTREME fatigue. Does anyone else have that? I'm not sure which issues are PBC or something else. I also see my "liver" Dr the end of this month.