Questions and answers about PBC

There's a very good website I'd like to recommend. It has questions and answers between PBC patients and doctors. Some of the same questions that some of you have posted on this website. The website is for the Canadian PBC Society.

After going to the site, click on the "research" tab at the top. Click on "Ask a Doc." After reading the questions and answers on this page there is a link to all the previous questions at the bottom. Some of the "previous" questions are very interesting. This is a good way to get information from many doctors treating PBC patients.

Here you go: pbc-society.ca/welcome.html

Hope this is helpful!

[busylady]

Good site - thanks fro the tip LoveMyLiver

[Maggs3petts]

I'm a member of the PBC Foundation, in Edinburgh and about a year ago they sent me a ring-binder style book called, 'Living with PBC'. Its excellent. Gives all the info needed to live with the illness. Also, because its in a ring-binder you can add any personal details or any info perculiar to you. (

[Alley27 in reply to Maggs3petts]

I recieved this binder a couple of weeks ago, and yes it is excellent....I am adding my own personal details.....how this disease affects me is one because we all have varying symptoms..I also include info relating to my AIH as well....I have not found anywhere that will send you a similar binder for AIH. If any one has any information it would be very appreciated Thanks.

xx conniefused

[RockPrincess in reply to Maggs3petts]

Thanks for the link! I was wondering how you got the binder? I live in Glasgow so am hoping I can get a similar thing as the advice from my gastro doc and what I read on the internet about PBC is often very contradictory!

[Hidden]

Thank you LoveMyLiver. This is a very informative site.

[zipitydoo]

Thank you for posting that.

[Maggs3petts]

Glad you got the PBC binder. I found it answered my concerns Mor fully than anything I'd read before. I've alsoi added in my other problems Rynauds, scleroderma, fibromyalgia, arthritis, etc. Its a good way of keeping that together, isint it? Hope you're able to get something similar on AIH. All the best, M.

[Jtxx]

I would also be very interested to find a binder giving the same level of information on AIH as the PBC one. There seems to be a few more now on this site with AIH/PBC overlap syndrome. X