I am new to this site, and over the past few weeks Ihave really found it to be a big source of inspiration and support. I was diagnosed in April 2010 with quite a late stage disease, and have considerable liver damage. One transplant assessment after a "blip" saw my liver recover, meaning I was not put on the list, Unfortunatly I have had a relapse now nearly a year later. This week I had a call from the hospital after having my last set of varicies banded and BC's done, to say they are definately referring me back to the transplant unit...........although hopeful ( am I??) this does not mean I will go on the list, let alone, get one, I guess I need assessing again.
However this post is to say I had sent for the Liver north support DVD out of curiosity in the meanwhile, and got it in the post today. I have just watched it. I have to say it made me cry............ but in a good way ( is that odd to say??). What an excellent piece of work, I have a smashing friend who has agreed to do the three peaks next year to help raise money for PBC, and do you know what................I think I may make a DVD for my local area for distribution ( well not me to personally do the DVD ha ha it would be rubbish if I did it)
What kinda things would be good to have on there do you think?? Am I way off the mark - the Newcastel DVD is good, is there another I could do that could add to this..................any ideas greatfully recieved