I am newly diagnosed with AIH and PBC (8 weeks ), and I am so happy I found this site. It has informed me more than my Gp or Consultant has just by reading everyones stories. Until I found you guys I was so upset about these conditions, I felt numb and uneducated. It's nice to know we are not alone in this debilitating disease. And I do understand that doctors don't know everything, but they do try to help if we are lucky.
I am becomming more accepting of my health conditions, and learning to live with it. I have had 2 good days this week, but the rest have been nasty, could'nt get out of bed for three of them..fatigue, joint pain and to add another symptom to all I alrady have, when i get what I now term as a flare up I also get diarroha.I am told that when I start taking Azathioprine things may improve..that is if my antibodies react well to this medication and there are not too many side effects.
I really do not like taking steroids. My face is becoming more rounded and I get odd blood sugar readings (i am not diabetic) I just keep an eye on glucose levels because prednisolone can cause diabetes. I also would not like to gain any weight..I have battled with my weight since after my son was born 18 years ago; when my hashimotos started. Fortunately for now there has been no weight gain, but that is possibly because one of my worst symptoms of PBC and AIH is no appetite. I have to force myself to eat or I don't. I even bought build up to help with the appetite, this is a worry to me.
I just want to say than you to everyone on this site for your support and encouragement. it's worth the earth especially to those who are not being heard.
Thank You All Very Much