I recently after being diagnosed with pbc, underwent an enoscopy. They discovered that i also had a hiatus hernia, and a tear in my oesophagus. I therefore had a very bad infection in my stomach. so, i go to the doctor on friday, expecting to start Urso medication, to get asked why i wanted to start this drug?????? also, i couldnt start it just now as i have to get rid of this infection that is so bad i have to take 14 tablets a day.
i am astonished at the lack of medical knowledge by the doctors and the lack of support from them. To get told BY A LETTER, that you have an incurable chronic liver disease and expected just to get on with things.
i find it very hard to comprehend, and some days i feel how long before the condition gets worse? 1 year, 5 years who knows.
i feel very low at times as just been diagnosed in the last few weeks. i have to stay normal for my fiance and my children who are young.its hard sometimes.