Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for December 2017

Lupus anticoagulant test

Could somebody please in form me how long it takes to get the result of a Lupus anti coagulant test ? I have been waiting weeks for the result. Also advice on...

Could somebody please in form me how long it takes to get the result of a Lupus ...

•6 years ago

Shingles Vaccine

I am booked for the Singles Vaccination later this week. But I gather it's not suitable for people with a weakened immune system. I have APS and slight...

I am booked for the Singles Vaccination later this week. But I gather it's not s...

•6 years ago

Temporal lobe seizures?

I now have possible Temporal lobe seizures, anyone else?!!

I now have possible Temporal lobe seizures, anyone else?!!

•6 years ago

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Query re Rivaroxiban

Hi I’m Marion. Been on here since June but only posted once or twice in reply to others. A couple of months ago I changed from warfarin to Rivaroxiban and I...

Hi I’m Marion. Been on here since June but only posted once or twice in reply to...

•6 years ago

APS Symptoms

Hello all! I recently found out that I have Vte+APS. I also have a splenic infarction. I have been breaking out in rashes and my lips swell. I recently went to...

Hello all! I recently found out that I have Vte+APS. I also have a splenic infar...

•6 years ago

Hydroxychloroquine? Manufacturerx

Hi, I’ve been on the above (however badly I spelled it!) for coming up 4 years I think at 400mg a day. Started with a statin as a trial & continued. I believe...

Hi, I’ve been on the above (however badly I spelled it!) for coming up 4 years I...

•6 years ago

Factor X Chromogenic Assay (FXC): I have this. It renders my “true vein value INR “ one full number lower than it actually is.

This apparently is why I’ve been reclotting. I don’t understand it that well yet. Please look up allinahealth.org It’s a lab out of the USA that manufactures...

This apparently is why I’ve been reclotting. I don’t understand it that well yet...

Administrator•6 years ago

Gabapentin

Hi i would think gabapentin will help a little and in time can be increased. I didnt feel any benefit when i was on low levels but it is one of those drugs...

Hi i would think gabapentin will help a little and in time can be increased. I d...

•6 years ago

Gabapentin

Hi, I’ve been prescribed gabapentin 200mg p/day to be taken at night. He said it was for nerve pain, even though I told him I’ve got bone pain in my hips and...

Hi, I’ve been prescribed gabapentin 200mg p/day to be taken at night. He said it...

•6 years ago

Advise on changing drug

Please excuse my spellings i am terrible and have no spell check 🙈 Hi! I have been diagnosed with Aps and test possitive for lupus for 4 yrs now. I had a...

Please excuse my spellings i am terrible and have no spell check 🙈 Hi! I have b...

•6 years ago

MS APS

This lady has suffered but is still strong - thanks http://www.telegraph.co.uk/news/1525231/Call-for-tests-to-avoid-misdiagnosis-of-MS.html

This lady has suffered but is still strong - thanks http://www.telegraph.co.uk/...

•6 years ago

Amitriptyline

Excuse the spelling !! Hi my APS family . I have now been on this drug now since beginning of October . I am pleased to say a lot of my symptoms have improved...

Excuse the spelling !! Hi my APS family . I have now been on this drug now sinc...

•6 years ago

Recurrent DVT's whilst on Clexane

Hi, I have no idea if I am in the right place, but if I run my problem past your eyes you may be able to redirect me. My daughter has a chromosome defect and...

Hi, I have no idea if I am in the right place, but if I run my problem past your...

•6 years ago

Strange new issue

Hi just to recap I’ve had two positive LA Anticoagulant results and i also have bilateral vestibular loss. The other day I had some strange new “attack” and...

Hi just to recap I’ve had two positive LA Anticoagulant results and i also have ...

•6 years ago

Looking for APS specialist

Hello everyone. I am looking for a doctor that specializes in treating APS. I live near Binghamton Ny and have not had any success with finding a specialist....

Hello everyone. I am looking for a doctor that specializes in treating APS. I l...

•6 years ago

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