Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for August 2017

Radiation & Chemo while on Lovonox

Hi friends. Since the recent diagnosis of anal cancer I will be seeing the Radiologist this week. I am wondering if there are suggestions for questions for the...

Hi friends. Since the recent diagnosis of anal cancer I will be seeing the Radio...

•7 years ago

Vascular dementia

Hi, I have received written confirmation that I have Vascular dementia. The type I have is the cortisol kind so it looks like Hughes is gradually killing off...

Hi, I have received written confirmation that I have Vascular dementia. The typ...

•7 years ago

Chicken Pox

Hello, I have just discovered my wife has chicken pox. What precautions should I take. I have had them and also Shingles. I am on MTX and steroids.

Hello, I have just discovered my wife has chicken pox. What precautions should I...

•7 years ago

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blood test question

I just dug back through my blood tests, and found the ones that were negative, they were the cardiolipin IgG and IgM the lupus antio coagulant was not...

I just dug back through my blood tests, and found the ones that were negative, t...

•7 years ago

Immunogloblin sub class defiency

Hi, just had a lenghy discussion with my son who had for the 1st seven years of his life had the above! He now has several health issues, including cluster...

Hi, just had a lenghy discussion with my son who had for the 1st seven years of ...

Administrator•7 years ago

What is a severe case of APS?

So far going by the checklist from the symptoms sheet taken from here: http://www.aps-support.org.uk/about-aps/what-are-the-symptoms.php I had: 1. Multiple...

So far going by the checklist from the symptoms sheet taken from here: http://ww...

•7 years ago

Quinine

I am feeling very comfortable with this group so I will reintroduce myself with my real name, Sharron and I live in southern Ontario, Canada. I saw somewhere,...

I am feeling very comfortable with this group so I will reintroduce myself with ...

•7 years ago

Joint pain

Hello there! I've posted here before. I have LA and Hashimotos. I'm being treated with an anticoagulant (Eliquis), which is working very well for me. I know...

Hello there! I've posted here before. I have LA and Hashimotos. I'm being treate...

•7 years ago

I have no idea what's coming next!

I wrote a post a few weeks ago regarding the thoughts I had that my hydroxy chloroquine was no longer working - while seeing my consultant I was diagnosed with...

I wrote a post a few weeks ago regarding the thoughts I had that my hydroxy chlo...

•7 years ago

Major head pain and tinnetis

My best friend and I are going through H___ trying to figure this out for 120 days. My husband is an optometrist and saw her for nystagmus and thought it was...

My best friend and I are going through H___ trying to figure this out for 120 da...

•7 years ago

Tender scalp pain

Morning everyone. I wondered if anyone has had these symptoms and can advise? Since an admission to hospital in 2012 with stroke like symptoms (see previous...

Morning everyone. I wondered if anyone has had these symptoms and can advise? Si...

•7 years ago

German with so many questions

Hello everyone! My diagnosis is not definite yet as the antibodies haven't been confirmed but my doctors already told me that no matter the next antibodies...

Hello everyone! My diagnosis is not definite yet as the antibodies haven't been...

•7 years ago

Very low potassium

I'm new to this and I just found out I have very low potassium and I been having the signs for three going on four years i dont know what to do because I'm new...

I'm new to this and I just found out I have very low potassium and I been having...

•7 years ago

Inr still rising slowly

I've been on warfarin for about 5mths now and I've gone from 1.7 to 2.6 since then, With it fluctuating up and down... Went from 2.4 back to 1.9 and so on. For...

I've been on warfarin for about 5mths now and I've gone from 1.7 to 2.6 since th...

•7 years ago

Long term Clexane or any form of heparin

Hi guys , On july 25th of last year i was diagnosed with several small blood clots in my lungs . I have no blood disorders or genetic conditions. After a...

Hi guys , On july 25th of last year i was diagnosed with several small blood cl...

•7 years ago

why can I hear cows?

Since my autoimmune nonsense started last year my hearing has been on a steep slope down into the sea. I struggle to hear people talking to me. But this...

Since my autoimmune nonsense started last year my hearing has been on a steep sl...

•7 years ago

APS specialist in Canada

Hello all, Could you kindly recommend a Dr. In Canada who is very knowledgeable about APS and follows Dr. Hughes regiment? I did try to make an appointment to...

Hello all, Could you kindly recommend a Dr. In Canada who is very knowledgeable ...

•7 years ago

Amoxicillin and amiodaron

Hello. Currently I'm taking warfarin and amidarone which is for afib rvr. If I need to take amoxicillin how would that effect my INR? When I need to go to the...

Hello. Currently I'm taking warfarin and amidarone which is for afib rvr. If I n...

•7 years ago

EEG examination with difuse findings

I had a checkup at the hospital a while back where I was informed they had found difuse findings in my eeg examination a while back witch needed further...

I had a checkup at the hospital a while back where I was informed they had found...

•7 years ago

Interaction between plaquenil and cellcept???

Has anyone experienced bad symptoms from taking both plaquenil and cellcept? I recently stated taking plaquenil, along with my usual meds (warfarin,...

Has anyone experienced bad symptoms from taking both plaquenil and cellcept? I r...

•7 years ago

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