Thank you for anyone who can help answer my questions,this is a nightmare that has no ending and it really effects my life knowing about WG .
I had 3 blood tests done to confirmed C ANCA level and PR3 ANCA they were positive every time! The PR3 value was double the mean value in different name of test:
1st test in May2015 I had ref value <1 result 7.6 , C ANCA is weakly positive ,MPO ANCA normal
2nd time in July 2015 ref value <20 result 43 , C ANCA is positive, MPO ANCA normal
3rd time Aug 2015 ref value <5 result 11, C3 is low ref 0.9-1.8 result 0.68,.
I had seen 3 rheumatologist and none wanted to treat me saying that I had to show symptom.They test CRP and ESR value and mine are normal. One of them order CT scan on my lung,sinuses and the result are fine.
No other test was recommend! I dont want to wait until it is too late and the symptom will show!
Is it possible that the PR3 Anca value cannot confrim WG?
Can the doctor give some medication as a precuation since the blood test shows abnormal value?
What type of specialist can look into more detail of WG since the rheumatologists seem to concern only
on my joints which i never have problems.
I am having shoulder pain radiates to my shoulder blade and back, night sweat, dry cough,weight loss,headache and they saidnothing to worry yet!!
What should I do? Should I wait til the symptoms appear or seek more specialist diagnostic?
Thank you very much.