Hi, this is my first post so please bear with me.
I have recently been seen by a rheumatologist, after suffering aches, swelling in ankles and a crop of spots on my legs and buttocks. All this started after having chronic sinusitis that started a year ago. I initially thought I was having a drug reaction as I had been on Clarithromycin for my sinuses.
Rheumatologist feels I have ANCA associated vasculitis and Proteinase 3. He initially said Churg Strauss, but is now unsure as something in my bloods didn't sit right so he was also mentioning Wegener's. He has now asked for a chest CT, as early this year I coughed up some small bloodclots and was treated for pneumonia. He has now ordered tests for GBM and anti C1q. I am lost in all this jargon and don't really understand what half of this means.
I will see him this Thursday for a follow up, when he says he will likely start me on 50mg of Mycophenolate Mofetil. He also wants me to see another ENT about my sinusitis and tinnitus. Since seeing him last week I have started to get spots similar to the ones earlier this year. I am usually pretty good with medical stuff, but I can't seem to take half of this in.
I am unclear if he is still trying to narrow down my diagnosis or if that is it? Has anyone else been given that as a diagnosis?