I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity.
My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the night listening to my breathing.
Does anyone else with WG and Saddle Nose Deformity experience this ?
Has anybody undergone a repair operation of their Saddle Nose please ?
All replies are welcome.