A useful paper on GCA and PMR

ccjm.org/index.php?id=10795...

[RichardE Volunteer]

Hi, I think HU has mangled your link. Could you try amending it or posting again as it doesn't seem to work ?

[Hidden in reply to RichardE]

Thank you RichardE.

It is so important for forums to publish links to academic papers and specialist videos in order to flag up new information or confirm the opinions of sufferers who give advice to other forum users. All I can suggest with this is to put Giant Cell Arteritis (or GCA) into the search window which is shown on the top right and this gives the papers in this category.

[piglette in reply to Hidden]

I am getting the March 2015 Cleveland Clinic Journal of Medicine with nothing on GCA or PMR. If I type in GCA in the search box I get two articles from 2002 and for PMR I get no articles at all.

[Hidden in reply to piglette]

I typed Giant Cell Arteritis and on page 1, I got 10 papers and on page 2, I got 6 more.

Try Cleveland Clinic Journal of Medicine + Giant Cell Arteritis in google, you might have better luck.

[piglette in reply to Hidden]

Thanks, I tried the initials GCA not the whole thing spelt out.

[Hidden in reply to RichardE]

Any chance of the correct link, please? Many thanks x

[Hidden]

Interesting you say..I guess GCA Isn't as well studied as Lupus or R.A....

[Hidden in reply to Hidden]

I wonder why not! Sometimes, if you have nothing to show the doctor they don't believe you're ill!

[Hidden]

You are so totally right about what you say, WMTuk. I had a bad experience with another Rheumy, lately, who's a good colleague of my Rheumy. He was clearly behind his schedule and when he was under pressure, all he could see was "negative" lab results. I have photos of temporal vein dilation. When I asked him "well, what do you think it is?" He couldn't say a word...Priceless.. I wish they would just give up on their trade if they had no interest in listening to patients.. Retire if he's so unhappy. He was venting on me as well telling me he's getting too many patients who are "seronegative" wasting his time. Their blind belief that you are ill only if your markers are positive is totally unscientific. Inflammatory markers are dictated by genes responsible for modulating individual immune system.

[Hidden]

The professionals hate it when patients know something about it!

[Hidden]

Sadly true based on reading what some of us went through (having had to see multiple doctors before being taken seriously). My labs / urine test /scan etc weren't normal either. These were ignored.