Interesting : dailymail.co.uk/news/articl... - Vasculitis UK
Interesting
Very interesting
It puts a new slant on the tingling in legs. Should we PMR/GCA sufferers be concerned?
Don't worry, Guillan Barre Syndrome starts with viral type symptoms. After a few days it progresses to pins and needles usually quickly followed by spreading paralysis.
It's fairly rare and doesn't always end up with total paralysis and an ITU stay.
I was amazed by the hospital wanting to turn the switch off so quickly (most likely to be a financial driven decision rather than "medical/ethical" decision. Sad yet still dire reality on NHS..
Hi ferntree,
I have worked for many years in ITU and we have never withdrawn treatment on a patient for financial reasons, in practice it just doesn't happen. It's an ethical decision, if the team feels the burden of treatment outweighs any potential improvement ( beneficence v non maleficence ). Obviously medical staff are human and can get it wrong!
I think this was a very complex case, my reading of it was that they didn't know she had Guillan Barre Syndrome ( GBS ) and would have been attributing the lack of response to a Hypoxic brain injury secondary to cardiac arrest. The GBS just made it more complex. Her care was obviously poor and mistakes were made, if they had diagnosed the GBS from the start she never would have been sent home and allowed to have a cardiac arrest.
That doesn't mean that I don't think there is a lot of penny pinching going on the NHS.
dailymail.co.uk/news/articl...
Another site on this subject:
I am afraid we are going to have to agree to disagree. I have nursed many patients using the Liverpool Care Pathway and it certainly wasn't back door euthanasia. It's what I would choose for end of life care.
What's the difference between GBS and Churg-Strauss syndrome, anyone know? I kind of had the same symptoms. Sandra
Hi Sandra,
Although they are both auto immune illnesses the symptoms are completely different.
GBS usually occurs after a viral or bacterial infection. The immune system attackers the nerves in the central nervous system causing them to become inflamed. Paralysis then ensues. In the worst cases patients with GBS are effectively paralysed. They are nursed in ITU because they can't breath unaided and require ventilation. They are unable to move any of their limbs, eyelids, mouth etc. the treatment is IV immunoglobulin and plasmapheresis. When the inflamation dies down the patient slowly regains control of their muscles and most people make a full recovery. GBS isn't a type of vasculitis.
I hope that helps!
Thank you - it does.
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