Really interesting, informative and excellent Oxford Vasculitis Support Group meeting yesterday - around 40 attended this meeting... .....
Speakers were Prof Raashid Luqmani - discussing the training website for assessment of Vasculitis ( BVAS/VDI) ,
Dr Christina Ponte - giving an update on the RUDY Project research.ndorms.ox.ac.uk/rudy/ ,
Dr Lorraine O'Neil - an overview of Vasculitis ,
Research Nurse Jennifer O'Donoghue - The role of a research nurse in studies of Vasculitis......
plus Stephen, speaking about his own personal story of being diagnosed with Central Nervous System Vasculitis (an extremely rare type of vasculitis) and living with Vasculitis. Stephen's presentation was excellent and just gave a brief insight in to what it is like to be diagnosed and live with this type of Vasculitis.
We met some old friends and made some new friends.
Just wanted to say thank you to Sue for an excellent meeting and for inviting us both.
We also collected the cheque from the "Valley Girls" , they have been fundraising for 4 different charities, and raised over £80,000 in total. This is a photo of the cheque presented to VUK. The total still keeps rising.... The Valley Girls are on the front cover of the VUK Spring newsletter.