I was diagnosed with GPA in early December 2012 and have had 5 lots cyclo and am currently taking 15 mg of prednisolone per day. I have the moon face and my consultants thinks my heavy eyelids are down to the general facial puffiness associated with taking steroids. However they were like this before diagnosis and I had seen a specialist optician for advice. She said that several of the drainage ducts on my top eyelids were blocked and hence made them seem very heavy - I was sent away to bathe them in hot water - which made no difference at all. Before I could go back to the optician I was hospitalised as my kidneys had failed and that of course became my main issue. Now, in April, I feel able to tackle my eyelids again and wondered whether anyone else has had similar problems. I have no problems with vision or with drainage of the eyes - just the eyelids.
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