At the beginning of April I swallowed my last 1mg of pred, having started on 30mg for a flare of CSS that began February 2012. Within a week I was experiencing breathing problems and my peak flow was dropping. This week I have been having lots of joint pain which is something I haven't had for years.
I've been living with CSS since Dec. 2003 so I usually recognise flare symptoms. This time it's odd because my bloods are coming back normal. My GP isn't happy with how I'm feeling so has started me on 5mg daily of pred to reduce to 4mg in a month. I'm also taking 100mg of azathioprine daily. He says that previously my blood results have changed some time after symptoms have appeared.
I feel both relieved (I might start feeling better) and disappointed (being back on pred.) I'm also confused. Is it possible to have vasculitis symptoms without it being a proper flare?