good days and bad days: today is a good day... - Vasculitis UK

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good days and bad days

quinnster profile image
12 Replies

today is a good day,feel great,but can never seem to string along more than a few good days with this illness

how often can anyone else go having good days,hours ,weeks,days,months

anyway today is a good day,so good health and good luck to you all

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quinnster profile image
quinnster
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12 Replies
hamble99b profile image
hamble99bVolunteer

good today is good quinnster :)

gives you something to hold on to on the "not-so" days.

I heard a saying once

"today is a good day, I'm dancing in my heart"

my good days vary too.

sandra.

quinnster profile image
quinnster

thanks Sandra,hope your keeping well also

nannie profile image
nannie

Like you, I never know. At the moment I have just had 3 good days but have woken up thismorning feeling very weak and weary. Luckily I'm not going out today so I shall have an easy day doing some embroidery. I have two nutty friends coming tomorrow so hopefully that will pick me up again. Just make the most of the good days while you have them. x

quinnster profile image
quinnster

morning nannie,i know what you mean,hope you feel better as the day goes on,so frustrating sometimes isn't it

cedric profile image
cedric

I am having a bad day today but I never know been out but could not wait to get back got hospital tomorrow am going to mention how I feel my feet and legs numb and my hand but got to plod on

quinnster profile image
quinnster

sorry to hear that,i get that numbness all the time as well,but hospital don't seem too concerned

Katie18 profile image
Katie18

Hi Quinnster yes I find the never knowing how you are going to feel frustrating too. I used to have good days then bad days. As time has gone on I manage good weeks then bad weeks. Hope your good days continue for a while!

quinnster profile image
quinnster

thanks Katie,and hope your good days are more frequent also,try to do as much as I can on the good days,because you don't know what the next day holds

AndrewT profile image
AndrewT

Dear quinnster,

yes we all have good days and bad days; my advice enjoy the good days and remember them on the bad days. Try to have more good days than bad days, if you can- I know this may not be entirely in your control! Above all remember that, even on bad days, you are still alive, something 'they' said you wouldn't be by now. Am I right? Thought so!

Anyway take care and enjoy what you can.

Kind regards

AndrewT

quinnster profile image
quinnster

thanhs andew,thats spot on,i do count every day I wake up as a bonus to be honest

you take care also

quinnster

notsossweets profile image
notsossweets

I recently went almost 5 weeks in a row of good days having not had more than 1 or 2 in the couple of years. But, if it's during the work week and my routine isn't interrupted, I can generally go 5 days of feeling moderately well but rarely symptom-free.

quinnster profile image
quinnster

that's great to hear,im having a good run too as well,long may it continue for everyone

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