Hi, my little boy has been referred to the periodic fever clinic in Bristol to see a specialist about the possibility of a rare form of Vasculitis.
We have had many consultations before but not this. What can we expect? I'm worried they will fob us off if he is having a 'good' few days, no rash and is generally well!
Samuel's Haematologist is referring us, so his history will show otherwise but sometimes unless Doctor's see it straight away, they kind of ignore it.
What sort of questions / tests can we expect from the first visit?
He has had his complement tested but it was an insufficient sample so we need it retested, he also had the ANCA test but that takes a while to come back.
Thanks in advance,