My 14 year old daughter was diagnosed with Wegeners in January of this year after being hospitalized with what was first diagnosed as pneumonia. She went into renal failure and was on a ventilator for 2 weeks before she started responding to medications. She is doing fairly well right now and is finishing up her last dose of Cytoxin and being started on methotrexate this week. I am reaching out to anyone that can give me information on what she may run in to in the future. Can she lead a normal life? Is there any new treatments out there that may be better and prolong her life? Any good information would be much appreciated. I love her more than anything and thoughts of losing her are constantly going through my mind even though I try to maintain a positive outlook.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.