Reducing cellcept - is there anything I need to know

[KTWells]

I saw my consultant on Thurs and as my bloods have been stable, he wants me to reduce my cellcept doses slowly. Is there any withdrawal symptoms in reducing immunosupressant drugs? Any advice would be great.

[John_Mills Volunteer]

Welcome fellow traveller! I too am currently reducing my Cellsept (mycophenolate) after having been on it for over 5 years. I've been reducing now for about 6 months - very gradual. I'm now down from 2.5gms a day to 1.5 and would not expect to be off it for many months yet.

I cannot report any side effects, in fact I feel even better than I have for a long time, with more energy & less fatigue.

My consultant is very cautious and that suits me. The past 5 yearson myco have been good and we both agreed that quality of life counts for a lot. We hear of so many cases where the consultant has been keen to get people off medication as soon as the disease seems to be in remission and then within months they have a relapse. It does take some of the cells in the immune system a long time to "forget" their bad habits, so in my opinion it's better to go slowly.